Brody's

Mito Mission

Based in Stockport, Greater Manchester

I’m Brody, and live in Stockport with my loving family.

Please take a little time to read Brody’s story below and find out how mitochondrial disease has affected him right from birth.

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Brody's

Story.

Brody’s mum, Donna,
tells the family’s journey with mito:

My Mito Mission Brody in Sensory Room

My partner Ben, son Declan and me were thrilled to be welcoming a new addition to our family back in 2021.

Brody arrived as expected in July … and for a heart-wrenching time, he wasn’t breathing. Once he was, it sounded really ‘rattly’. High lactate levels indicated heart issues and that something was underlying. A brain MRI found cysts then at 6 weeks old, genetic testing confirmed mitochondrial disease.

Two genes are involved – MT-TW and MT-ATP6. It’s a very rare form of mito that specialists confirmed is a type of Leigh Syndrome. We’ve also learned that it is maternally inherited.

That means that I’m affected too

- but much more mildly than Brody.

I work for the NHS in admin support for Stepping Hill Cardiology department, so that helped with some of the medical terms. But it’s still difficult to take all the information in – especially on top of the emotional turmoil of it being about our much-loved, baby boy. Like so many people, we’d never heard of mitochondrial disease, other than it featuring on Coronation Street.

My mito mission Brody & Family

Brody’s heart problems are currently well-managed by medication but overall, his symptoms impact on him a great deal. Significant choking problems led to tube feeding and he has severe development delays. Brody’s smiles when he was 4 months old just melted our hearts.

Sadly, seizures which began at 5 months

left Brody unable to smile, or cry.

He’s barely able to open his eyes now too, making it hard to gauge how he’s feeling.

It’s obviously incredibly difficult to see our beautiful Brody so poorly, but we pull together as a loving family to get through. Declan, now 13, is the most wonderful big brother and completely dotes on Brody just as Ben and I do.

Thanks for reading my story.

Brody and family

June 2022

My Mito Mission Brody & Goat

Our mission is to raise more awareness

about mito by sharing our story.

My Mito Mission Brody & Declan Under Blanket

 I’m a member of Affinity Choir, Stockport who are already planning to support Brody’s Mission which is heart-warming.

People’s kindness, support and understanding can make such a difference.

We also hope to connect with other families

living with the same, or a similar, variant.

It helps to feel a part of a group of people, and not so alone.

Raising awareness along with others helps us feel a part of increasing hopes of treatments and a cure being found.

 

Brody, Declan & Donna

Brody's Mito Mission

Get involved and

support Brody's cause.

Whether you support Brody’s mission, any other single mission or My Mito Mission as a whole – it’s all the same great cause.

Spreading the word, following, sharing, as well as donating and raising funds are all really helpful and valued. From running a race to hosting a bake sale, giving out Brody’s Mito Mission leaflets to finding a home for a collecting can – there are so many ways in which you can get involved.

If you’d simply like to donate to Brody’s mission, choose a way that suits you below.

Be a Regular Mito Hero

To make a regular donation by direct debit through GoCardless, please click on the relevant image below

For any other amount or frequency (eg weekly, quarterly, annual), simply contact us

Fundraise for Brody’s Mito Mission

We’d love your support with our fundraising… and we can provide supporting materials. Just ask!

JustGiving Logo
Set up a fundraising page above (Use the orange ‘Fundraise For Us’ button)
Set up a fundraising event on Facebook using the image above
Sponsor Form
Download a sponsor form to print off by clicking the image above
Collecting Can
Ask us for support materials such as buckets, cans, leaflets and more

Fundraise and shop!

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Support us at no cost to you when you shop with Amazon
Fundraise on Give as You Live
Support us at 100s of stores. Click green, ‘Find Your charity’ button
My Mito Mission Shop
Check out our merchandise to raise awareness and funds
Fundraise on eBay
Click, ‘add to my favourites’ (just under our charity details)
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Set us as your favourite charity (under our name to the right)

Other ways you can support us

My Mito Monthly Prize Draw
Support our Monthly Prize Draw on Crowdfunder
Nominate My Mito Mission
Nominate Brody's Mission at your work or club
Collect things to sell
Collect stuff we can sell, raffle prizes, tombola prizes
Help to sell our merchandise
Help us to sell our merchandise. Contact us
Volunteers needed
Donate your time. Let's chat about what you might do

Visit our Support Us page for more inspiration!

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Brody's Mito Mission No Strap

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