"It's easy to feel powerless
in the face of mito.
But not always easy to do anything about it. We wanted to empower everyone affected by mitochondrial disease to do something.
Something to help them tell their own story to increase awareness, funds for research and hopes of a cure. Something their family, friends and community could really grasp, take to heart and rally around.
My Mito Mission was born."
Christine Beal, Co Founder and Chair
The founders and trustees of My Mito Mission are the family and friends of Emma Beal from West Yorkshire, UK. Emma became ill when she was 21 back in 2010 with no known history of mitochondrial disease in her family.
See more on Emma’s story here.
When we decided to help raise awareness and find a cure, we felt that having a personal mission centred on Emma to which family and friends could really relate, would be by far the most effective. We also wanted to make it easy for anyone else with mito to do likewise.
So in August 2017, My Mito Mission was born and preparations made to launch our first mission – Emma’s Mito Mission – in the Autumn.
Tragically, Emma unexpectedly died of heart failure caused by mitochondrial disease in the September that year. With very heavy hearts, but knowing it would be what Emma would want, we launched her mission at her funeral. We like to think of Emma as our CAO (Chief Angelic Officer) and are thrilled at what we we’ve achieved so far … have a look for yourself!
The world pandemic meant the cancellation or postponement of many of our plans for 2020, and into 2021. Our focus has been to build new income streams, our volunteer team, our missions and our foundations so that we can emerge all the stronger as the UK – and the world – emerges into a ‘nearer normal’.
Our inspirations continue to be those who live with mito daily and those who have tragically been lost to the condition. We work to bring them more recognition, treatments, support … and above all, hope for a cure.
Please continue to support us!
We couldn’t do what we do without you.
There are other excellent charities in the UK and worldwide dedicated to mito (see My Mito Directory). My Mito Mission aims to complement, not compete with other charities’ work and to financially support some of them through our grant funding. We are all ultimately working for the same goal – to raise awareness, support, funds for research and hopes for a cure for mitochondrial disease.
We are funded primarily by individuals like you – from donations and fundraising efforts. The majority of funds goes to research towards finding a cure for mitochondrial disease. We also aim to educate everyone about mito and to improve the information and support available to those with mito and their families.
We’re proud to be able to say the due to the ‘manpower’ to run our charity being voluntary, the vast majority of money donated goes directly to furthering our aims.
Statistics from launch of charity to end of December 2020
Our Mission Statement
To enable individuals with mitochondrial disease to be at the heart of their own personal mission under one collective banner.
To empower them along with their families, friends and communities to increase awareness, funds for research, support and information and above all hope for a cure for everyone with mitochondrial disease.
To grant funds to research and additional support to benefit as wide a cross section of those affected as possible.
To raise awareness amongst the general public about mitochondrial disease and the vital importance and potential of mitochondrial research. To increase understanding that more research into mitochondrial function could be the key to unlock treatments for many common conditions which affect MILLIONS in the UK alone.
Mitochondrial disease is a known and understood condition across the general public and medical profession alike. Those affected by mito feel that their illness is known, understood and that they are supported as with any other condition.
Mitochondrial research has expanded and successfully brought diagnosis for everyone affected and treatments for the many linked conditions as well as for mitochondrial disease.
Mitochondrial disease is treatable to the point of having of little or no impact to those affected, or is cured completely.