Emily's

Mito Mission

Based in Ayr, Ayrshire

Incredibly sadly, Emily died on 4th October 2021, aged just 5. It's her family's wish for her mission to stand as a tribute and legacy for a very special little girl.

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Emily's

Story.

Emily's Mito Mission baby Emily

As told by Emily’s mum, Samantha …

Emily was born on the 27th July 2016 by emergency caesarean after a scan at 37 weeks showed she was going into multi-organ failure. She remained poorly into toddlerhood with frequent infections. It was suspected that Emily had a form of cancer affecting her immune system

In December 2018 the diagnosis came

– it was Pearson Syndrome

… a form of mitochondrial disease. Emily was the only case in Scotland at the time, with less than 100 worldwide. Digestion and liver problems, fatigue and muscle weakness were just some of the symptoms alongside the immunity issues.

Despite her ill-health, Emily grew from an adorable baby to a cute, feisty little girl who loved all things pink and sparkly. Adored by our older children, Natasha, Daniel and Nicole, Emily had us all wrapped around her little finger, including me and dad, Kevin.

Emily's mito mission Emily and Family

Nicknamed, ‘Princess Emily’, she loved Disney princesses, starring in TikTok videos and buying B&M pyjamas. She was a little ‘foodie’, with sweeties and roast dinners her firm favourites, especially Yorkshire pudding!

The 2020 pandemic meant Emily’s vulnerability was a massive worry. The mildest of infections posed significant risks to her life. Isolating at home kept her infection-free for 18 months. In May ’21 she caught a common cold and a severe temperature spike which meant she had to be admitted to hospital. While there, she developed further complications which increased fears for Emily, who was already fighting so hard.

Her already weakened body couldn’t cope.

By July she was in a coma.

Specialist care in London was considered, but Emily was deemed too poorly. She came home in September before going back into hospital where she passed away peacefully in my arms on 4th October, aged 5.

Thanks for reading my story.

Emily’s family

July 2022

Emily with sparkles

Emily’s Mito Mission is a special legacy

for our gorgeous little girl

Emily with food

 … who will be in our hearts always. Just as she’ll live on within our family, we’d like Emily, and her story, to live on and inspire others.

We want a future where nobody

is told there are no treatments, or cure

… or loses a precious loved one to mito, like Emily. We know that with the help and kindness of our family, friends and community, we can raise some awareness and funds for research together.

Emily & dad with birthday cake

Emily's Mito Mission

Get involved and

support Emily’s cause.

Whether you support Emily’s mission, any other single mission or My Mito Mission as a whole – it’s all the same great cause.

Spreading the word, following, sharing, as well as donating and raising funds are all really helpful and valued. From running a race to hosting a bake sale, giving out Emily’s Mito Mission leaflets to finding a home for a collecting can – there are so many ways in which you can get involved.

If you’d simply like to donate to Emily’s mission, choose a way that suits you below.

Be a Regular Mito Hero

To make a regular donation by direct debit through GoCardless, please click on the relevant image below

For any other amount or frequency (eg weekly, quarterly, annual), simply contact us

Fundraise for Emily’s Mito Mission

We’d love your support with our fundraising… and we can provide supporting materials. Just ask!

JustGiving Logo
Set up a fundraising page above (Use the orange ‘Fundraise For Us’ button)
Set up a fundraising event on Facebook using the image above
Sponsor Form
Download a sponsor form to print off by clicking the image above
Collecting Can
Ask us for support materials such as buckets, cans, leaflets and more

Fundraise and shop!

Amazon Smile
Support us at no cost to you when you shop with Amazon
Fundraise on Give as You Live
Support us at 100s of stores. Click green, ‘Find Your charity’ button
My Mito Mission Shop
Check out our merchandise to raise awareness and funds
Fundraise on eBay
Click, ‘add to my favourites’ (just under our charity details)
PayPal Giving Fund Logo
Set us as your favourite charity (under our name to the right)

Other ways you can support us

Nominate My Mito Mission
Nominate Emily's Mission at your work or club
Collect things to sell
Collect stuff we can sell, raffle prizes, tombola prizes
Help to sell our merchandise
Help us to sell our merchandise. Contact us
Volunteers needed
Donate your time. Let's chat about what you might do

Visit our Support Us page for more inspiration!

Every like, comment and share counts.
Check out My Mito Mission’s Facebook Page, Twitter & Instagram too!

Mito Matters to Millions

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    Mitochondrial Disease Research