Hazel's

Mito Mission

Based in Darlington, County Durham

Hello, I’m Hazel. I live in Darlington, with my husband who I married in 2014, Mark.

Read

Read arrow

Hazel's

Story.

Hazel with husband Mark

Up until a few years ago, nobody in our family had any idea we were affected by mitochondrial disease. In fact, like many people, we’d not even heard of it. Now, we know that it’s in at least four generations of our family.

It was my nana (pictured above) who was first diagnosed several years ago. My mum was already suffering from a range of challenging health conditions including arthritis, scoliosis and osteoporosis. She got tested following her own mum’s diagnosis. Sure enough, mum was affected too, and we now know that her muscle weakness and ptosis (drooping eyelids) is down to mito. We’re not sure how much it’s behind everything else, but my mum really struggles day-to-day now and I’m her full-time carer. I decided to be tested in 2020 and was told I’m also affected and have just started with fatigue symptoms.

It’s hard to take it in. To think you’re okay one minute, then there’s an issue like this

with all its implications.

My Mum Carolyne, my Nana Eileen, me and Aunty Norma

We’re all under specialists in Newcastle. Maybe later I’ll have a muscle biopsy to find out more. People can be impacted differently even with the same gene, so it’s not straight forward and can still leave lots of questions unanswered. Other family members have been tested too but some have understandably decided against it.

It’s difficult not to worry about

what might lie in the future

But I prefer to focus on staying positive and looking after my family and myself as best I can.

As well as caring for my mum I love to spend

time with other family members

I’m step-mum to Kien, Robin, Conner & Alfie and a devoted auntie to Kyle, Katie and Oliver-Lee and have two cats – Cookie and Dexter. My hobbies are crafting, reading (fiction by Danielle Steele, Lesley Pearse and Virginia Andrews being favourites), cooking, playing board games with the family and sometimes a bit of gaming.

Thanks for reading my story.

Hazel and family
July 2021

Hazel with nieces and nephews

My mission is to raise some
much-needed awareness

… and hopes of treatments and a cure for our family and everyone affected. I’m planning to use my crafting skills to raise some funds for mito research..

Whatever support people can give

will be really appreciated

The more we can raise for research, the more hopeful we can all be for a cure – not only for mito – but for other illnesses that are linked to it too.

The more people know about mito,
the less those affected will feel isolated.

Hazel's family walking

Hazel's Mito Mission

Get involved and

support Hazel's cause.

Any funds raised by Hazel’s mission goes to My Mito Mission’s central funds to be granted towards research and support projects to benefit everyone affected by mito.

Spreading the word, following, sharing, as well as donating and raising funds are all really helpful and valued. From running a race to hosting a bake sale, homing a collecting can to giving out Hazel’s Mito Mission leaflets – there are so many ways in which you can get involved.

If you’d simply like to donate to Hazel’s mission, choose a way that suits you below.

Be a Regular Mito Hero

To make a regular donation by direct debit through GoCardless, please click on the relevant image below

For any other amount or frequency (eg weekly, quarterly, annual), simply contact us

Fundraise for Hazel’s Mito Mission

We’d love your support with our fundraising… and we can provide supporting materials. Just ask!

JustGiving Logo
Set up a fundraising page above (Use the orange ‘Fundraise For Us’ button)
Set up a fundraising event on Facebook using the image above
Sponsor Form
Download a sponsor form to print off by clicking the image above
Collecting Can
Ask us for support materials such as buckets, cans, leaflets and more

Fundraise and shop!

Amazon Smile
Support us at no cost to you when you shop with Amazon
Fundraise on Give as You Live
Support us at 100s of stores. Click green, ‘Find Your charity’ button
My Mito Mission Shop
Check out our merchandise to raise awareness and funds
Fundraise on eBay
Click, ‘add to my favourites’ (just under our charity details)
PayPal Giving Fund Logo
Set us as your favourite charity (under our name to the right)

Other ways you can support us

My Mito Monthly Prize Draw
Support our Monthly Prize Draw on Crowdfunder
Nominate My Mito Mission
Nominate Hazel's Mito Mission at your work or club
Collect things to sell
Collect stuff we can sell, such as auction items
Help to sell our merchandise
Help us to sell our merchandise. Click the image to contact us
Volunteers needed
Donate your time. Let's chat about what you might do

Visit our Support Us page for more inspiration!

Every like, comment and share counts.
Check out My Mito Mission’s Facebook Page, Twitter & Instagram too!
Hazel's Mito Mission logo

Mito Matters to Millions

Make a Donation.

Sign up for our newsletter




    footer-logo-white250

    Let’s put energy into
    Mitochondrial Disease Research