Laura's

Mito Mission

Based in Northwich, Cheshire

Incredibly sadly, Laura died on 27th June 2021. It's her family's wish for her mission to continue - as a tribute and legacy for a beautiful young lady.

Read

Laura's

Story.

Laura Climbing

Hello. I’m Laura, 23, and I was born and raised in Northwich, Cheshire where I live with my mum Dawn and her partner, Steve. I have an older brother, Sam. Apart from being a bit late with the odd milestone as a baby, I was fine health-wise but as I got towards school age I increasingly bumped into things and my eyesight was found to be really poor. Severe optic nerve damage was identified as the problem, but no explanation for its cause. I also walked a little awkwardly which was put down to my sight restrictions.

As I got older, I struggled more and more physically. At the age of twelve I needed to start using a wheelchair occasionally for any extended walking, and gradually more and more. Loads of test were done to try to get to the bottom of my health issues but I remained what my Neurologist said was a ‘lovely mystery’!

Laura Close Up

Me and my family have always

got on with life around my disabilities.

After leaving education I enjoyed being an intern – with support – doing office and administration work. I loved keeping active and with the help of ‘Wheelies’, a fantastic charity based near us, went on several sailing adventures.

On the third trip in February 2018 to Cape Verdi I suddenly started having major seizures. This led to being in hospital for a whole six months before they were under control with medication, first abroad and then at home.

It was a very difficult and scary time

for us all during which I lost my sight

completely, practically overnight.

It also affected my speech and left me permanently in need of a wheelchair. The seizures took out a lot of strength on my left side, which is frustrating as I’m left-handed.

New blood tests finally established

that I have a form of mitochondrial disease.

It’s caused by a fault with the OPA 1 gene. The diagnosis brought me under the care of the specialist mito team in Oxford.

My passion now is listening to Radio 1. I have a broad taste in music from Rhianna (who I’ve been lucky enough to meet) to the Arctic Monkeys, Ed Sheeran, Gerry Cinnamon … to name just a few.

Thanks for reading my story.

Laura & Dawn Hunt
August 2020

Laura in Panda Top

I hope to raise
more awareness.

… by having my own ‘mito mission’ and telling my story.

I can help show how this condition has many variants which affect people in many different ways.

Laura and Sam

It’s wonderful to think

that one day there’ll be treatments.

Laura on Pillow

Right now, it’s just about managing the symptoms.

Any help anyone can give to help us to raise awareness and funds for research with ‘Laura’s Mito Mission’ will be really appreciated.

It feels good to be a part – 
of making a difference.

Laura's Mito Mission

Get involved and

support Laura’s cause.

Whether you support Laura’s mission, any other single mission or My Mito Mission as a whole – it’s all the same great cause.

Spreading the word, following, sharing, as well as donating and raising funds are all really helpful and valued. From running a race to hosting a bake sale, homing a collecting can to giving out Laura’s Mito Mission leaflets – there are so many ways in which you can get involved.

If you’d simply like to donate to Laura’s mission, choose a way that suits you below.

Be a Regular Mito Hero

To make a regular donation by direct debit through GoCardless, please click on the relevant image below

For any other amount or frequency (eg weekly, quarterly, annual), simply contact us

Fundraise for Laura’s Mito Mission

We’d love your support with our fundraising… and we can provide supporting materials. Just ask!

JustGiving Logo
Set up a fundraising page above (Use the orange ‘Fundraise For Us’ button)
Set up a fundraising event on Facebook using the image above
Sponsor Form
Download a sponsor form to print off by clicking the image above
Collecting Can
Ask us for support materials such as buckets, cans, leaflets and more

Fundraise and shop!

Amazon Smile
Support us at no cost to you when you shop with Amazon
Fundraise on Give as You Live
Support us at 100s of stores. Click green, ‘Find Your charity’ button
My Mito Mission Shop
Check out our merchandise to raise awareness and funds
Fundraise on eBay
Click, ‘add to my favourites’ (just under our charity details)
PayPal Giving Fund Logo
Set us as your favourite charity (under our name to the right)

Other ways you can support us

Support our Mega Monthy Raffle on Facebook
Nominate My Mito Mission
Nominate My Mito Mission at your work or club
Collect things to sell
Collect stuff we can sell, raffle prizes, tombola prizes
Help to sell our merchandise
Help us to sell our merchandise. Contact us
Volunteers needed
Donate your time. Let's chat about what you might do

Visit our Support Us page for more inspiration!

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    Mitochondrial Disease Research