Mito Mission

Based in Sheffield, South Yorkshire

Hello. I’m Lillia, I’m 6 and live in Sheffield with my mummy, daddy and my big brother Harrison. I love the colour pink ... & Peppa Pig!

Lillia and her family live with the impact of mitochondrial disease every day. Please take a little time to read their story.


Read arrow



As told by her mum,

Lillia in buggy

My partner of 11 years, Matt and I live in the Parson Cross area of Sheffield. We were thrilled to welcome Lillia in 2016 after a normal pregnancy and birth, a sister for Harrison, then aged 3.

When Lillia was 5 months old, I noticed some strange rapid eye movements.

After a series of tests we were shocked

to learn that Lillia had severe sight impairment.

When she didn’t reach subsequent milestones, further tests found some kidney anomalies but these didn’t really explain what was wrong and medically, she was a bit of a mystery. There was also some ‘brightening’ on Lillia’s MRI scans but we were told this could be connected to the eye problems.

After having tonsillitis at 3, Lillia sadly lost some of her development, including some Makaton she’d learned and her ability to weight-bear. Genetic testing in October 2020 found a fault with the OPA1 gene. A muscle biopsy in the following February brought the confirmation last October that Lillia has a form of Leigh’s Syndrome, a variant of mitochondrial disease. We were referred to specialists in Newcastle.


We’re still reeling, really, from how things have progressed.


It’s hard learning that something like mito

is underlying, with no treatments or cure ... yet.

What keeps us focused positively, despite the inevitable ‘wobbles’, is Lillia herself. She is the most delightful little girl and always smiling and happy. She loves school and adores socialising with other children and has the most amazing relationship with her big brother. The colour pink and Peppa Pig are also firm favourites!

Thanks for reading my story.

Lillia and family

March 2022

Lillia and family

Lillia’s Mito Mission will also be

a great positive focus for us.


 Keeping busy doing something so constructive, which will help raise awareness and funds in our daughter’s name will be almost like therapy in itself.

We hope that our awesome family, friends

and community will support us too.

Together we can help to raise hopes of a cure – not only for our gorgeous little girl, but for everyone who is affected by mitochondria disease.

Lillia's Mito Mission

Get involved and

support Lillia’s cause.

Whether you support Lillia’s mission, any other single mission or My Mito Mission as a whole – it’s all the same great cause.

Spreading the word, following, sharing, as well as donating and raising funds are all really helpful and valued. From running a race to hosting a bake sale, giving out Lillia’s Mito Mission leaflets to finding a home for a collecting can – there are so many ways in which you can get involved.

If you’d simply like to donate to Lillia’s mission, choose a way that suits you below.

Be a Regular Mito Hero

To make a regular donation by direct debit through GoCardless, please click on the relevant image below

For any other amount or frequency (eg weekly, quarterly, annual), simply contact us

Fundraise for Lillia’s Mito Mission

We’d love your support with our fundraising… and we can provide supporting materials. Just ask!

JustGiving Logo
Set up a fundraising page above (Use the orange ‘Fundraise For Us’ button)
Set up a fundraising event on Facebook using the image above
Sponsor Form
Download a sponsor form to print off by clicking the image above
Collecting Can
Ask us for support materials such as buckets, cans, leaflets and more

Fundraise and shop!

Amazon Smile
Support us at no cost to you when you shop with Amazon
Fundraise on Give as You Live
Support us at 100s of stores. Click green, ‘Find Your charity’ button
My Mito Mission Shop
Check out our merchandise to raise awareness and funds
Fundraise on eBay
Click, ‘add to my favourites’ (just under our charity details)
PayPal Giving Fund Logo
Set us as your favourite charity (under our name to the right)

Other ways you can support us

My Mito Monthly Prize Draw
Support our Monthly Prize Draw on Crowdfunder
Nominate My Mito Mission
Nominate Lillia's Mission at your work or club
Collect things to sell
Collect stuff we can sell, raffle prizes, tombola prizes
Help to sell our merchandise
Help us to sell our merchandise. Contact us
Volunteers needed
Donate your time. Let's chat about what you might do

Visit our Support Us page for more inspiration!

Every like, comment and share counts.
Check out My Mito Mission’s Facebook Page, Twitter & Instagram too!
Lillia's Mito Mission Logo

Mito Matters to Millions

Make a Donation.

Sign up for our newsletter


    Let’s put energy into
    Mitochondrial Disease Research