Mito Mission

Based in Leeds, West Yorkshire

Hi, I’m Lucas and live in Middleton, Leeds with my mum Danni and step-mum Yane. I also enjoy spending regular time with my dad, Andy.


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As told by mum,

Lucas and Danni together

Lucas was born prematurely in May 2008. Things didn’t seem quite right health-wise from the start, but when I raised concerns, I was assured it was due to his prematurity.

At 4 months old, Lucas was referred to a paediatrician. Nystagmus (excessive eye movement) was identified. By 18 months old, further testing brought a diagnosis of ‘Partial Agenesis of Corpus Callosum’. The two halves of Lucas’s brain were only partially joined.

This was devastating enough

- but there was more.

Lucas with Danni and Yane

Mitochondrial disease was suspected too – a completely separate condition. When Lucas was 3, mito was confirmed and a year on identified as a form called Pyruvate Dehydrogenase Complex Deficiency (PDCD).

Mentally, Lucas stayed at around 2 years old, but his general health was relatively good. However, in summer ’22 when he was 14 he got a bad cold, then a wheeze which developed into breathing difficulties, then seizures for the first time.

He was hospitalised and ended up in ICU

with pneumonia, and lactate levels off the scale.

Lucas in hospital

It was touch and go and incredibly scary .. but thankfully he pulled through. But from being a ‘pocket rocket’ before, he now has far less energy and needs to use his wheelchair much more often.

Despite everything, Lucas is such a cheerful little soul with a brilliant sense of humour – he just loves making everyone laugh. He adores school and loves being involved in the Leeds United Foundation both playing and watching. He also has a real passion for clothes!

Thanks for reading my story.

Lucas and family

January 2023

Lucas at Leeds United Football Club
Lucas with Andy

Lucas’s Mito Mission
is to raise awareness

… and hopes of treatments and a cure for everyone who is impacted by mitochondrial disease.

Having a child with a progressive condition

can be mentally and emotionally hard

… but our mission gives us a positive focus and enables us to make a real difference.

Any help you can give is appreciated. Thank you

Lucas drinking

Lucas's Mito Mission

Get involved and

support Lucas's cause.

Any funds raised by Lucas’s mission goes to My Mito Mission’s
central funds to be granted towards research and support projects
to benefit everyone affected by mito.

Spreading the word, following, sharing, as well as donating and raising funds are all really helpful and valued. From running a race to hosting a bake sale, homing a collecting can to giving out Lucas’s Mito Mission leaflets – there are so many ways in which you can get involved.

If you’d simply like to donate to Lucas’s mission, choose a way that suits you below.

Be a Regular Mito Hero

To make a regular donation by direct debit through GoCardless, please click on the relevant image below

For any other amount or frequency (eg weekly, quarterly, annual), simply contact us

Fundraise for Lucas’s Mito Mission

We’d love your support with our fundraising… and we can provide supporting materials. Just ask!

JustGiving Logo
Set up a fundraising page above (Use the orange ‘Fundraise For Us’ button)
Set up a fundraising event on Facebook using the image above
Sponsor Form
Download a sponsor form to print off by clicking the image above
Collecting Can
Ask us for support materials such as buckets, cans, leaflets and more
Change box collecting money for My Mito Mission
Ask anyone you know to have a Change Box, Small change - Big difference!

Fundraise and shop!

Amazon Smile
Support us at no cost to you when you shop with Amazon
Fundraise on Give as You Live
Support us at 100s of stores. Click green, ‘Find Your charity’ button
My Mito Mission Shop
Check out our merchandise to raise awareness and funds
Fundraise on eBay
Click, ‘add to my favourites’ (just under our charity details)
PayPal Giving Fund Logo
Set us as your favourite charity (under our name to the right)

Other ways you can support us

My Mito Monthly Prize Draw
Support our Monthly Prize Draw on Crowdfunder
Nominate My Mito Mission
Nominate Lucas's Mito Mission at your work or club
Collect things to sell
Collect stuff we can sell, such as auction items
Help to sell our merchandise
Help us to sell our merchandise. Click the image to contact us
Volunteers needed
Donate your time. Let's chat about what you might do

Visit our Support Us page for more inspiration!

Every like, comment and share counts.
Check out My Mito Mission’s Facebook Page, Twitter & Instagram too!
Lucas's Mito Mission Logo

Mito Matters to Millions

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    Let’s put energy into
    Mitochondrial Disease Research