Providing the kind of support those affected by mito want and need is at the very core of what we do.
Time after time, we have heard that people are worried about whether they will get appropriate medical care where mitochondrial disease will be taken into account, either for themselves or a loved one – especially in an emergency situation, or where communication is difficult for any reason.
We listened, explored options and liaised further… and these fabulous wristbands are the result. We are delighted to now be able to provide them free of charge for anyone with mito.
These superb quality wristbands have been developed by The ID Band Company and are adjustable to fit from wrist size 5.25 to 8.25 inches. Known as Medical Ultrabands, they are made from super soft silicone and are totally waterproof and ultra hard wearing, yet smooth, flexible and comfortable to wear.
This unique, bespoke version made especially for My Mito Mission and the mito community is in our vibrant, easily-seen green – the international colour for mito. The clear black text engraved on bright white panels gives direct access via a QR code to specialist mito guidelines and also to the level of additional medical and personal information each wearer would like.
Read on to find out more – including how you can order yours now!
There are also other useful medical alert tools made available through our friends at The Lily Foundation and CamRARE, namely Medical Alert Cards and Rare Patient Passports. Read more about them on The Lily Foundation’s website here.
Available
now, free of
charge to
anyone with
a mito
diagnosis.
(UK only)
In an emergency situation, or in a more general medical setting where there is no mito specialism, medical professionals can:
The clinical guidelines let medical professionals know if and when they need to alter the standard treatment according to mito patients’ needs, and who they can contact if they need further advice.
The red text on the images below shows what information can be personalised. Please note that the actual text on the band will be black.
On the outer wristband – ICE contact number/s. ICE is a recognised abbreviation for ‘In Case of Emergency.’
On the inner wristband – All 3 lines can contain information of your choice (each up to 45 characters including spaces and the word ‘ICE’).
This example below shows one ICE contact phone number.
This example below shows two ICE contact phone numbers.
Our examples above show some ideas of what might be inside the wristband, but there’s a range of information you may want to include. Here is a list of suggestions of the type of things you could have on your wristband inner:
The red text on the image below shows what can be personalised. Please note that the actual text on the band will be black.
On the outer wristband – ICE details up to 45 characters (including spaces and the word ‘ICE’).
On the inner wristband – No personal information.
This example below shows one ICE contact phone number.
This example below shows two ICE contact phone numbers. Please be aware that this leaves very few characters to say who they are.
If you wish to order more than one wristband, please complete and submit one form per wristband, as many times as needed. Available to UK residents only.
Orders will normally be despatched within 3 working days by 2nd class Royal Mail.
Please contact us if you have not received your wristband within 2 weeks of ordering.
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contact@mymitomission.uk | 0300 102 1112
My Mito Mission is a Charity Registered in England & Wales No. 1176616 at c/o KT Hydraulics, Gannex Park, Dewsbury Road, Elland HX5 9AF
