About My Mito Mission | Our Story

The founders and trustees of My Mito Mission are the family and friends of Emma Beal from West Yorkshire, UK. Emma became ill when she was 21 back in 2010 with no known history of mitochondrial disease in her family.

See more on Emma’s story here.

When we decided to help raise awareness and find a cure, we felt that having a personal mission centred on Emma to which family and friends could really relate, would be by far the most effective. We also wanted to make it easy for anyone else with mito to do likewise.

So in August 2017, My Mito Mission was born and preparations made to launch our first mission – Emma’s Mito Mission – in the Autumn.

Tragically, Emma unexpectedly died of heart failure caused by mitochondrial disease in the September that year. With very heavy hearts, but knowing it would be what Emma would want, we launched her mission at her funeral. We like to think of Emma as our CAO (Chief Angelic Officer) and are thrilled at what we’ve achieved so far…

We now have many missions across the UK, all working towards that common goal – Individually making a local impact, together making a national difference for everyone affected.

Our inspirations remain those who live with mito daily and those who have tragically been lost to the condition. We work to bring them more recognition, treatments, support… and above all, hope for a cure.