Based in Belfast
Hello. I’m Paige Koch, I’m 4 and live in Belfast with my mummy, daddy, big sister Aimee Rose, and baby sister Chloe. Some of my favourite things are being tickled, being with my sisters (who both love me to bits) and having fun and family time in my hydrotherapy hot tub. And I love, love, LOVE Peppa Pig!
Paige’s mum, Josephine tells the family’s journey with mito:
Paige’s health problems began with having seizures at five weeks old. A muscle and skin biopsy early this year confirmed that she has a complex 1 mitochondrial disease respiratory defect, but as yet the exact gene that has caused it hasn’t been identified.
Our hope for Paige’s is that treatments and a cure may be found so that mito will have less impact on her life going forward and allow her to live a full life.
One day she could be falling all over the place and on others walking around fine. Paige has both hearing and sight loss, can’t to speak, needs a feeding tube, has weakness on her left side and muscle tightness in her left leg. She gets chest infections regularly for which she needs nebulizer and inhalers.
“When Paige takes ill it knocks her back a lot
but she always come back fighting”
Thanks for reading our story.
The Koch Family
one simple wish.
For Paige to have
a normal life and future.
It’s hard when your child is chronically sick. When it’s a little-known illness and there’s an uncertain prognosis and limited understanding from the world at large, it can be even harder.
Feeling powerless to do anything about it can be very hard
too. That’s why Paige’s family want to be a part of raising
more awareness for mito … and hopes of treatments and a cure.
Just a little support for their mission
would mean such a lot.
More awareness, more research
… more hope.
Josie and Mark and their family and friends plan to
raise funds to the extent they can. This is of
course around their unwavering priority of ensuring
that Paige is taken care of.
Other people’s kindness in helping out with their
mission will go such a long way in taking it forward
… and in helping Paige’s family to feel as hopeful
and supported as possible.
Paige's Mito Mission
Get involved and
support Paige’s cause.
Whether you support Paige’s mission, any other single mission or My Mito Mission as a whole – it’s all the same great cause.
Spreading the word, following, sharing, as well as donating and raising funds are all really helpful and valued. From running a race to hosting a bake sale, homing a collecting can to giving out Paige’s Mito Mission leaflets – there are so many ways in which you can get involved. Visit our Support Us page for inspiration!
Set up a fundraising page for Paige’s Mito Mission & donate here:
Or follow and share Paige’s Story on social media