Regan's

Mito Mission

Based in West Midlands

Hello, I’m Regan Nash. I am 11 years old and live in Cradley Heath, West Midlands with my mum, stepdad, brother Kai and sister Laci.
I want to be 18, drive an orange car and feed a panda
– because I love pandas!

Read

Regan's

Story.

Regan Nash has mitochondrial disease

Melanie Morris, Regan’s Mum tells the family’s journey with mito:

Regan was premature and had some health problems from birth. As he got older his health grew progressively worse. In 2018 Regan had a muscle biopsy test which showed that he has MTT1 – a rare form of Leigh Syndrome, which is a mitochondrial disease.

Because this form of mito comes from the mitochondria’s own DNA carried maternally, I was tested too along with my other children. We were also found to have it, but in a less severe form.

Regan Nash with Kai and Laci

Unfortunately, 98% of Regan's cells

carry the faulty DNA, making the impact severe.

It has caused severe development delay, twisted legs, balance issues, very weak muscles, spasms and cramps, speech problems, epilepsy and autism. He uses a wheelchair, his right side is losing all mobility and the condition is now attacking his eyesight.

We’re watching Regan die slowly. I suffer from terrible anxiety as I’m scared of losing my child. There’s no cure, he’s just on medication to make him as comfortable as he can be for the time he has with us. It’s all the more difficult to cope with because there’s so little understanding and very limited support. That’s something we want to help change.

Despite everything he has to go through

Regan never stops smiling.

He’s got such a wicked personality – he will laugh at anything and is a complete inspiration to us. Please do anything you can to help us raise awareness and hopes of a cure for mito.

Thanks for reading our story.

Regan's Family
September
2019

Regan Nash and family dealing with mitochondrial disease

One family's

simple wish.

For Regan to have
a normal life and future.

Having a poorly child is never easy. If they have a little-known illness and poor prognosis it’s even harder. Add to that your other children having the chance of being impacted too – and you start to get an insight into how much Regan and his family want to be a part of raising hopes of treatments and a cure for mito.

Mitochondrial disease sufferer Regan Nash's family hope he can have a normal life and future

Just a little support for their mission

would mean such a lot.

The Nash Family

The family’s main focus is keeping Regan as well and as happy as
possible – and making memories.

Mel and Craig and grandparents Kerry and Gary plan to raise awareness and funds to the extent they’re able. This is of course limited by their absolute priority of ensuring that Regan, Kai and Laci are taken care of, including all the medical needs that this involves.

Other people’s kindness in helping out with their mission will go such a long way in taking it forward … and in helping Regan’s family to feel hopeful and supported.

Regan's Mito Mission

Get involved and

support Regan’s cause.

Whether you support Regan’s mission, any other single mission or My Mito Mission as a whole – it’s all the same great cause.

Spreading the word, following, sharing, as well as donating and raising funds are all really helpful and valued. From running a race to hosting a bake sale, homing a collecting can to giving out Regan’s Mito Mission leaflets – there are so many ways in which you can get involved.

If you’d simply like to donate to Regan’s mission, choose a way that suits you below.

Be a Regular Mito Hero

To make a regular donation by direct debit through GoCardless, please click on the relevant image below

For any other amount or frequency (eg weekly, quarterly, annual), simply contact us

Fundraise for Regan’s Mito Mission

We’d love your support with our fundraising… and we can provide supporting materials. Just ask!

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Set up a fundraising page above (Use the orange ‘Fundraise For Us’ button)
Set up a fundraising event on Facebook using the image above
Sponsor Form
Download a sponsor form to print off by clicking the image above
Collecting Can
Ask us for support materials such as buckets, cans, leaflets and more

Fundraise and shop!

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Support us at no cost to you when you shop with Amazon
Fundraise on Give as You Live
Support us at 100s of stores. Click green, ‘Find Your charity’ button
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Check out our merchandise to raise awareness and funds
Fundraise on eBay
Click, ‘add to my favourites’ (just under our charity details)
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Set us as your favourite charity (under our name to the right)

Other ways you can support us

Support our Mega Monthy Raffle on Facebook
Nominate My Mito Mission
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Collect things to sell
Collect stuff we can sell, raffle prizes, tombola prizes
Help to sell our merchandise
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Volunteers needed
Donate your time. Let's chat about what you might do

Visit our Support Us page for more inspiration!

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