Online mito info all in one place
Our directory is aimed at saving you time searching the internet. We welcome any additions or feedback.
Please be aware that we can’t vouch for the content of the sites we find, and all descriptions are taken from those sites.
https://open.spotify.com/show/4ZDDD1tl4wLXtkgYjSytWs – for Spotify users
https://podtail.com/podcast/hugs-for-mito/ – alternative link
Mitochondrial Disease and Rare Disease Awareness, Advocacy, Research, Fundraising and Hopefully Cures.
The mitoPodCast is a program aimed at building awareness in the mitochondrial medicine, research and patient advocacy community on topics related to mitochondrial disease and health as well as to highlight cutting-edge research in the field.
Our audio-format episodes are approximately 10-15 minutes in length and will feature the exciting work of an expert in the field in a way that can be understood by all in the community. Included with every episode will be an infographic summary of what was discussed so please check that out as well!
www.mitoaction.org/education/energy-in-action/
The podcast series—Energy In Action—consists of conversations with patients, families, researchers, and thought leaders in the mitochondrial disease communities. These podcasts will give you a glimpse into the lives of families affected by mitochondrial disease and the latest in clinical trials, diagnosis, research, and the advancement of therapies. Once each month, join us for our special episode of Parents as Rare to hear from parents affected by a rare disease themself and how they navigate caring for their family and managing their own care.
https://mitopodcast.blogspot.com/
A podcast for families and friends of children with Mitochondrial Diseases. Support, resources, community.
A collection of UMDF podcasts on You Tube.
In this section we take you to the sources of video that we’re aware of, to enable you to explore individual videos which may be of interest to you.
Search results for mitochondrial disease.
https://www.thelilyfoundation.org.uk/about-us-2/media-resources/
Here you can find a collection informative videos about mitochondrial disease, stories of those affected by mito and some behind the scenes videos from The Lily Foundation fundraising events.
A complimentary collection of on-demand videos covering common questions and topics.
Search “mitochondrial disease” for 190 videos (at August 2024).
Search “mitochondrial disease” – in quotes – for 3000+ videos (at December 2019) specific to mitochondrial disease. Use the filter option to narrow search.
A search without quotes will result in thousands more options all featuring either ‘mitochondrial’ or ‘disease’, but not necessarily ‘mitochondrial disease’.
Compilations on YouTube uploaded by various mito charities can be found by searching the charity name eg “The Lily Foundation”, “Mito Action”, “My Mito Mission” etc.
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contact@mymitomission.uk | 0300 102 1112
My Mito Mission is a Charity Registered in England & Wales No. 1176616 at c/o KT Hydraulics, Gannex Park, Dewsbury Road, Elland HX5 9AF
