My Mito
Directory
Online mito info all in one place
Helplines
We regularly check the directory content, but please let us know of any more we can add.
Mito specific
The Abel Foundation
The Lily Foundation
www.thelilyfoundation.org.uk/find-support/need-someone-to-talk-to
The Charlie Gard Foundation
All conditions including mito
Child Bereavement UK
Genetic Disorders UK
Metabolic Support UK (was Climb)
Muscular Dystrophy UK
www.musculardystrophyuk.org/get-the-right-care-and-support/our-helpline
Together for Short Lives
www.togetherforshortlives.org.uk/get-support/supporting-you/helpline
Single conditions which mito can cause
Action On Hearing Loss
beta.actiononhearingloss.org.uk/information-and-support/information-line/
Ataxia UK
The Brain & Spine Foundation
British Heart Foundation
Cardiomyopathy UK
www.cardiomyopathy.org/how-we-can-help/our-cardiomyopathy-helpline
Diabetes UK
Epilepsy Society
Royal National Institute of Blind People (RNIB)
