My Mito
Directory

Online mito info all in one place

Helplines

Our directory is aimed at saving you time searching the internet. We welcome any additions or feedback.

Please be aware that we can’t vouch for the content of the sites we find, and all descriptions are taken from those sites.

Mito specific

The Abel Foundation

www.theabelfoundation.org.uk/how-we-can-help/our-phoneline

LHON Society

https://lhonsociety.org/community/join-the-buddy-scheme

The Lily Foundation

www.thelilyfoundation.org.uk/find-support/lilys-helping-hand

All conditions including mito

Child Bereavement UK

childbereavementuk.org/about-our-helpline

Contact

contact.org.uk/advice-and-support/our-helpline

Gene People

genepeople.org.uk/about-us/helpline/

Metabolic Support UK (formerly Climb)

metabolicsupportuk.org/support-information/contact

Muscular Dystrophy UK

www.musculardystrophyuk.org/support/services/speak-to-us

Newlife

newlifecharity.co.uk

React

reactcharity.org/contact

Together for Short Lives

www.togetherforshortlives.org.uk/get-support/supporting-you/helpline

Turn2Us

www.turn2us.org.uk/About-Us/Our-helpline

Unique

www.rarechromo.org

Single conditions which mito can cause

These charities are for specific conditions which mito can cause. Therefore they will not necessarily be able to give any mito specific information or support.

Ataxia UK

www.ataxia.org.uk/support-services/helpline/

The Brain & Spine Foundation

www.brainandspine.org.uk/supporting-you/helpline/

The Brain Charity

www.thebraincharity.org.uk/how-we-can-help/practical-help/information-advice

British Heart Foundation

www.bhf.org.uk/informationsupport/our-heart-helpline

British Liver Trust

britishlivertrust.org.uk/information-and-support/support-for-you/helpline-and-online-community/

Cardiomyopathy UK

www.cardiomyopathy.org

Children's Liver Disease Foundation

childliverdisease.org/parents/talk-to-someone/

Diabetes UK

www.diabetes.org.uk/how_we_help/helpline

Epilepsy Society

www.epilepsysociety.org.uk/epilepsy-helpline#.XsFy0EBFyM8

PKD Charity

pkdcharity.org.uk

Royal National Institute of Blind People (RNIB)

www.rnib.org.uk/about-rnib/contact-us

RNID

Sue Ryder (Neurological)

www.sueryder.org/contact-us

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