Steph Brooks, Author at Mitochondrial Disease Charity

Welcoming Clare’s Mito Mission!

We are honoured to welcome Clare’s Mito Mission, based in Cramlington, Northumberland.

You can read Clare’s story on our webpage where her story highlights how as well as dealing with a diagnosis of mitochondrial disease can also bring loneliness, anxiety and depression. It is Clare’s hope that through her mission she can help to power the support that is desperately needed as well as raise awareness and funds for mito research.

Any support for Clare’s mission will be hugely appreciated.

If you are impacted by mitochondrial disease you can get more information about starting your very own Mito Mission here.

Welcoming Clare's Mito Mission!

We are honoured to welcome Clare’s Mito Mission, based in Cramlington, Northumberland.

Any support for Clare’s mission will be hugely appreciated.

If you are impacted by mitochondrial disease you can get more information about starting your very own Mito Mission here.

Welcoming Tizzy’s Mito Mission!

We are honoured to welcome Tizzy’s Mito Mission, based in Chepstow, Monmouthshire. This mission is being led by her loving mum Helen, following Tizzy’s passing in 2018.

You can read Tizzy’s story on our webpage where her story shows how the symptoms of mitochondrial disease can suddenly appear at any point, changing lives forever and bringing isolation and loneliness.

Any support for Tizzy’s mission will be hugely appreciated.

If you are impacted by mitochondrial disease you can get more information about starting your very own Mito Mission here.

Welcoming Tizzy's Mito Mission!

We are honoured to welcome Tizzy’s Mito Mission, based in Chepstow, Monmouthshire. This mission is being led by loving mum Helen, following Tizzy’s passing in 2018.

Any support for Tizzy’s mission will be hugely appreciated.

If you are impacted by mitochondrial disease you can get more information about starting your very own Mito Mission here.

The Energy Ball 2025 – A Huge Success!

We’re thrilled to announce that we raised an incredible £11,680 at The Energy Ball 2025 – a fantastic achievement!
Thank you so much to those who joined us. It was fantastic to see everyone coming together to enjoy the entertainment, take part in the games, and have fun with all the wonderful prizes and auctions.
All the photos and magic mirror snaps from the evening have now been uploaded to our website – do have a look and relive the magic here.
We were especially thrilled to have 18 individuals and families impacted by mitochondrial disease with us on the night. We hope you felt the warmth and support from our community and everyone involved. Of course, we also remember those who couldn’t be with us – forever in our hearts.
A special heartfelt thank you to our headline sponsor, KTH Engineering Group, whose generous support made the night possible. We owe so much to Richard Ellis and the team, who enable us to do so much more as a charity by donating office space to us at their Elland site – we couldn’t run events, host volunteers and staff, and store all the things we need to run our charity without them. Please learn more about KTH Engineering Group here.
Thank you also to our other sponsors, donors, and supporters – including Freemans, Gaggia, Hebask, David Whitehead, Jones Jewellery, Safe Anchor Trust, Alan Hill, Lattitude7, Towngate, Safety Systems Technology, Thornhill Estates, and of course our missionee and artist Paul Jorden! A huge donation also came from the Rock Choir who entertained everyone with an outstanding performance! And last but not least, thank you to our amazing volunteers who helped on the night and pulled in so many wonderful prizes.
Save The Date
Next year’s ball will take place on Saturday 25th April 2026, at the same venue, the stunning Cedar Court Bradford! If you’d like to be the first to know when tickets are released, and catch those discounted ‘early bird’ prices, please register your interest using the form here.
If you’d like to keep updated on what we’re up to generally, including future events and updates, do sign up to our newsletter here.

The Energy Ball 2025 - A Huge Success

We’re thrilled to announce that we raised an incredible £11,680 at The Energy Ball 2025 – a fantastic achievement!

Thank you so much to those who joined us. It was fantastic to see everyone coming together to enjoy the entertainment, take part in the games, and have fun with all the wonderful prizes and auctions.

All the photos and magic mirror snaps from the evening have now been uploaded to our website – do have a look and relive the magic here.

We were especially thrilled to have 18 individuals and families impacted by mitochondrial disease with us on the night. We hope you felt the warmth and support from our community and everyone involved. Of course, we also remember those who couldn’t be with us – forever in our hearts.

A special heartfelt thank you to our headline sponsor, KTH Engineering Group, whose generous support made the night possible. We owe so much to Richard Ellis and the team, who enable us to do so much more as a charity by donating office space to us at their Elland site – we couldn’t run events, host volunteers and staff, and store all the things we need to run our charity without them. Please learn more about KTH Engineering Group here.

Thank you also to our other sponsors, donors, and supporters – including Freemans, Gaggia, Hebask, David Whitehead, Jones Jewellery, Safe Anchor Trust, Alan Fish, Lattitude7, Towngate, Safety Systems Technology, Thornhill Estates, and of course our missionee and artist Paul Jorden! A huge donation also came from the Rock Choir who entertained everyone with an outstanding performance! And last but not least, thank you to our amazing volunteers who helped on the night and pulled in so many wonderful prizes.

Save The Date

Next year’s ball will take place on Saturday 25th April 2026, at the same venue, the stunning Cedar Court Bradford! If you’d like to be the first to know when tickets are released, and catch those discounted ‘early bird’ prices, please register your interest using the form here.

If you’d like to keep updated on what we’re up to generally, including future events and updates, do sign up to our newsletter here.

Welcome to Aria’s Mito Mission

We’re delighted to be welcoming Aria’s Mito Mission to our growing team. Aria and her family are based in Bradford, West Yorkshire.

Aria’s story story shows how mitochondrial disease can affect many different systems in the body, and how symptoms and a diagnosis can come seemingly out of nowhere.

Aria’s mission is to raise awareness of mitochondrial disease as Aria’s parents hadn’t even heard of mito when the diagnosis came.

Welcome to Aria's Mito Mission!

We’re delighted to be welcoming Aria’s Mito Mission to our growing team. Aria and her family are based in Bradford, West Yorkshire.

Aria’s story shows how mitochondrial disease can affect many different systems in the body, and how symptoms and a diagnosis can come seemingly out of nowhere.

Aria’s mission is to raise awareness of mitochondrial disease as Aria’s parents hadn’t even heard of mito when the diagnosis came.

You can click here to read Aria’s story.

Yorkshire 3 Peaks Challenge 2025

Following on from the success of last year’s event, our second Yorkshire 3 Peaks Challenge will be taking place on Saturday 7th June 2025.
This year, participants have the choice of either walking all three peaks or one. Young people aged 14 and over can participate in the One Peak Challenge.
This is a supported walk with a highly trained team of mountain guides on hand to help you through the challenge, and we will provide you with all the information you need to be prepared ahead of the big day, and to power up your fundraising!
The deadline to sign up is Wednesday 28th May, so be sure to get your entry in soon!
If you or anybody you know might be interested in taking part or if you would like more information, please click here.

Yorkshire 3 Peaks Challenge 2025

Following on from the success of last year’s event, our second Yorkshire 3 Peaks Challenge will be taking place on Saturday 7th June 2025.

This year, participants have the choice of either walking all three peaks or one. Young people aged 14 and over can participate in the One Peak Challenge.

This is a supported walk with a highly trained team of mountain guides on hand to help you through the challenge, and we will provide you with all the information you need to be prepared ahead of the big day, and to power up your fundraising!

The deadline to sign up is Wednesday 28th May, so be sure to get your entry in soon!

If you or anybody you know might be interested in taking part or if you would like more information, please click here.

My Mito Mission at the Mitochondrial Disease Patient Info Day in Newcastle!

We were absolutely delighted to attend the Newcastle Mito Patient Information Day!
We spent the day meeting and connecting with families impacted by mito, researchers and medical professionals working hard to improve the quality of life and care for mito patients, and our incredible fellow charities & organisations: The Lily Foundation, who we’ve collaborated with in our research funding previously, The Noah Jordan Foundation, a recently formed paediatric mitochondrial disease charity, and Muscular Dystrophy UK.
We took the opportunity to continue promoting our free medical alert wristbands for mito patients, designed to provide a little peace of mind. Anybody with a diagnosis of mitochondrial disease can order one online for themselves or on behalf of their loved one (UK only).
A big thank you to all the brilliant organisers of this event, and to all who attended! It was amazing to meet so many different families and hear their stories, and to discuss collaborations and developments with research specialists.
Why not follow our social media pages for more updates and insights from the day, and on our charity activities?
You can also subscribe to our e-Newsletter below…

My Mito Mission at the Mitochondrial Disease Patient Info Day in Newcastle!

We were absolutely delighted to attend the Newcastle Mito Patient Information Day!

We spent the day meeting and connecting with families impacted by mito, researchers and medical professionals working hard to improve the quality of life and care for mito patients, and our incredible fellow charities & organisations: The Lily Foundation, who we’ve collaborated with in our research funding previously, The Noah Jordan Foundation, a recently formed paediatric mitochondrial disease charity, and Muscular Dystrophy UK.

We took the opportunity to continue promoting our free medical alert wristbands for mito patients, designed to provide a little peace of mind. Anybody with a diagnosis of mitochondrial disease can order one online for themselves or on behalf of their loved one (UK only).

A big thank you to all the brilliant organisers of this event, and to all who attended! It was amazing to meet so many different families and hear their stories, and to discuss collaborations and developments with research specialists.

Why not follow our social media pages for more updates and insights from the day, and on our charity activities?

You can also subscribe to our e-Newsletter below…

Launching our Medical Alert Wristbands!

We’re pleased to announce that our Medical Alert Wristbands are now available to order, free of charge for anybody with a mito diagnosis.
Providing the kind of support those affected by mito want and need is at the very core of what we do.
Time after time, we have heard that people are worried about whether they will get appropriate medical care where mitochondrial disease will be taken into account, either for themselves or a loved one – especially in an emergency situation, or where communication is difficult for any reason.

Launching our Medical Alert Wristbands

We’re delighted to announce that our Medical Alert Wristbands are now available to order, free of charge for anybody with a mitochondrial disease diagnosis.

Read on to find out more about the project, and how to order yours if you’re impacted.

Providing the kind of support those affected by mito want and need is at the very core of what we do. Time after time, we have heard that people are worried about whether they will get appropriate medical care where mitochondrial disease will be taken into account, either for themselves or a loved one – especially in an emergency situation, or where communication is difficult for any reason.

We listened, explored options and liaised further… and these fabulous wristbands are the result. We are thrilled to now be able to provide them free of charge for anyone with mito.

These superb quality wristbands have been developed by The ID Band Company and are adjustable to fit from wrist size 5.25 to 8.25 inches. Known as Medical Ultrabands, they are made from super soft silicone and are totally waterproof and ultra hard wearing, yet smooth, flexible and comfortable to wear.

(Left to right) Some of our valued missions modelling their wristbands: Callie’s Mito Mission, Ardglass; Aiman’s Mito Mission, Rochdale; Regan’s Mito Mission, Cradley Heath

This unique, bespoke version made especially for My Mito Mission and the mito community is in our vibrant, easily-seen green – the international colour for mito. The clear black text engraved on bright white panels gives direct access via a QR code to specialist mito guidelines and also to the level of additional medical and personal information each wearer would like. The clinical guidelines let medical professionals know if and when they need to alter the standard treatment according to mito patients’ needs, and who they can contact if they need further advice.

Medical wristbands can help communicate your medical needs when you can’t. In an emergency situation, or in a more general medical setting where there is no mito specialism, medical professionals can:

be alerted to your condition
gain quick access to specialist clinical guidelines
be aware of any other medical needs, allergies etc.
access personal information such as your name, your emergency contact name and their details

We initially launched the wristbands to our missionees, and have received some incredible feedback so far:

“Having a medical alert wristband gives me reassurance that people will know about my illness should anything happen and I’m unable to tell them.” – Steph, Bury St Edmunds

“Having our medical wristbands makes things easy for hospital stays and appointments; instead of repeating myself about mito each time, they can now scan the QR code and get all information they need.” – Melanie, West Midlands

A huge thank you goes to our valued missionees for their input in developing these bands, to the Newcastle Mitochondrial Disease Clinic, and to The ID Band Company!

Order yours now on our website – just scroll to the bottom of the page to find the order form, and fill in your details.

Project 1000 Strong gets its first Business Supporter!

Our scheme to sign 1,000 people and businesses up to donate regularly has its first business supporter.

Project 1000 Strong has had 73 people sign up so far to give us a donation every month and our good friend, Raj Beadle – managing director of a company which sells iconic Italian coffee machines throughout the UK – is now giving us an amazing £50 a month.

Raj runs Gaggia UK which is less than a mile from us on the other side of Elland on the Lowfields Business Park.

Raj has supported My Mito Mission many times in the past by providing free coffee and machines for our coffee mornings, making donations and providing coffee machines as raffle prizes.

Here’s what he says about signing up to Project 1000 Strong: “When we learned My Mito Mission had set up Project 1000 Strong it was the logical step for us to take that support to another level by making a regular £50 a month donation.

“Times are tough for charities to fundraise or apply for grants so regular giving helps them to budget for the months and years ahead, knowing what’s coming in and what they can then afford to do to help support people with mitochondrial disease or to put into medical research.”

Our co-founder and chair of trustees Christine Beal adds: “Regular donations are the most powerful way to support our vital work, allowing us as a small, high-energy charity to plan and build from a strong foundation.

“We need a 1000 strong team of amazing people to donate any amount from just £2 a month. Yes, 1000 is a lot but, one by one, we know we can reach it and strengthen the future of Mito awareness, support and research.”

When it comes to donations, just £2 can buy some small tombola prizes and £5 covers a My Mito Mission collecting can while £50 pays for vital counselling appointments for someone impacted by mitochondrial disease and £200 equips a family or individual with their own mission, a ready-made ‘charity in a box’ enabling them to raise awareness and reduce isolation.

To find out more and to sign up go to https://www.mymitomission.uk/project-1000-strong

To read more about Gaggia UK’s charity work go to https://www.gaggiadirect.com/supporting-charities.html

'PROJECT 1000 STRONG's First Business Supporter!

Our scheme to sign 1,000 people and businesses up to donate regularly has its first business supporter.

Project 1000 Strong has had 73 wonderful people sign up so far to give us a donation every month and our good friend, Raj Beadle – managing director of a company which sells iconic Italian coffee machines throughout the UK – is now giving us an amazing £50 a month.

Raj runs Gaggia UK which is less than a mile from us on the other side of Elland on the Lowfields Business Park.

Raj has supported My Mito Mission many times in the past by providing free coffee and machines for our coffee mornings, making donations and providing coffee machines as raffle prizes.

Click here to find out more about Project 1000 Strong.

You can read more about Gaggia UK’s charity work and to see Raj’s interview with Christine here.

Warmly Welcoming Callie’s Mito Mission!

We are honoured to welcome Callie’s Mito Mission, based in Ardglass, County Down, who has joined our Mito Mission family today.

You can read Callie’s story on our webpage where her family tell of just how rare her particular mitochondrial disease, PPA2, is. Callie’s family are very keen to raise mitochondrial disease awareness. They
also believe that mitochondrial research should have a much higher profile in the medical community, as it could be the key to treating many illnesses not just mito.

Any support for Callie’s mission will be hugely appreciated.

If you are impacted by mitochondrial disease you can get more information about starting your very own Mito Mission here.

Warmly Welcoming Callie's Mito Mission!

We are honoured to welcome Callie’s Mito Mission, based in Ardglass, County Down, who has joined our Mito Mission family today.

You can read Callie’s story on our webpage where her family tell of just how rare her particular mitochondrial disease, PPA2, is. Callie’s family are very keen to raise mitochondrial disease awareness. They also believe that mitochondrial research should have a much higher profile in the medical community, as it could be the key to treating many illnesses not just mito.

Any support for Callie’s mission will be hugely appreciated.

If you are impacted by mitochondrial disease you can get more information about starting your very own Mito Mission here.

The Energy Ball 2025

We are thrilled to announce that on Saturday 10th May 2025 we will be holding our annual charity ball, The Energy Ball sponsored by KT Hydraulics. This is our flagship event to raise vital mito awareness and funds for mitochondrial research and support for families impacted.

The ball will take place at Cedar Court Hotel Bradford, 6.30pm till late. Tickets are now on sale at the early bird price which includes a welcome drink and a 3 course meal.

You can click here for more information.

This year we three exciting sponsorship packages available for your company or workplace to purchase, each having different perks.

If you would still like to support our event but you can’t make it on the night, please get in touch!

The Energy Ball 2025

We are thrilled to announce that on Saturday 10th May 2025 we will be holding our annual charity ball, The Energy Ball sponsored by KT Hydraulics.

This is our annual flagship event to raise vital mito awareness and funds for mitochondrial research and support for families impacted.

The ball will take place at Cedar Court Hotel Bradford, 6.30pm till late. Tickets are now on sale at the early bird price which includes a welcome drink and a 3 course meal.

You can click here for more information and here to buy your tickets.

This year we have three exciting sponsorship packages available for your company or workplace to purchase, each with different perks, including marketing, CSR and a great night out! Contact us to purchase your package, or to discuss bespoke sponsorship opportunities.

If you would still like to support our event but you can’t make it on the night, please get in touch!

We hope to see you there for a magical night of powering support, awareness and research for mitochondrial disease!

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