Category: Charity Info

We are honoured to welcome Tizzy’s Mito Mission, based in Chepstow, Monmouthshire. This mission is being led by her loving mum Helen, following Tizzy’s passing in 2018.

You can read Tizzy’s story on our webpage where her story shows how the symptoms of mitochondrial disease can suddenly appear at any point, changing lives forever and bringing isolation and loneliness.

Any support for Tizzy’s mission will be hugely appreciated.

If you are impacted by mitochondrial disease you can get more information about starting your very own Mito Mission here.

We’re delighted to be welcoming Aria’s Mito Mission to our growing team. Aria and her family are based in Bradford, West Yorkshire.

Aria’s story story shows how mitochondrial disease can affect many different systems in the body, and how symptoms and a diagnosis can come seemingly out of nowhere.

Aria’s mission is to raise awareness of mitochondrial disease as Aria’s parents hadn’t even heard of mito when the diagnosis came.

We are honoured to welcome Callie’s Mito Mission, based in Ardglass, County Down, who has joined our Mito Mission family today.

You can read Callie’s story on our webpage where her family tell of just how rare her particular mitochondrial disease, PPA2, is. Callie’s family are very keen to raise mitochondrial disease awareness. They
also believe that mitochondrial research should have a much higher profile in the medical community, as it could be the key to treating many illnesses not just mito.

Any support for Callie’s mission will be hugely appreciated.

If you are impacted by mitochondrial disease you can get more information about starting your very own Mito Mission here.

We are honoured to welcome Justine’s Mito Mission, based in Stoke, Staffordshire. This mission is being led by her loving husband Jason, following Justine’s passing earlier this year.

You can read Justine’s story on our webpage where her story highlights the devastation that mito brings and the complex care issues that can arise for those impacted.

Any support for Justine’s mission will be hugely appreciated.

If you are impacted by mitochondrial disease you can get more information about starting your very own Mito Mission here.

We’re delighted to be welcoming another new mission to our growing team- Gordon’s Mito Mission, based in Oldham, Greater Manchester!

Gordon’s mission was launched by his loving partner Dot at his funeral and celebration of life on 2nd December 2024. Gordon was diagnosed with MELAS and had heart attacks aged 42 and 50 with a stroke in between.

Just before Gordon’s 56th birthday, he suffered a devastating heart attack which unfortunately he couldn’t recover from.

Dot ‘implores anyone with mito to never delay personal plans, excursions or celebrations because the illness is cruel and steals time, plans and futures.’

Gordon’s mission is to help others affected
by mito and to create a lasting and meaningful legacy for a special person who faced too many challenges.

Today we officially welcome The Singh Family from Perth, Perthshire to our My Mito community!

Jacqui is joined by her mum Ruby, her daughter Shishi (22) and her sons Jaeden (19) and Rubyn (10) for their family mission – a first of its kind for our charity.

All the family is impacted by mitochondrial disease and you can read their story on their webpage and about how the illness has tragically impacted their wider family too.

Their mission is to help increase awareness and understanding about the condition within their local communities and to gain more opportunities to meet with other affected individuals and families.

We are honoured to welcome Laura’s Mito Mission, based in Brixton, South London, who has joined our Mito Mission family today.

You can read Laura’s story on our webpage where she tells of how she received not only one difficult diagnosis – mitochondrial disease – but also a second challenging diagnosis just a few years later.

Any support for Laura’s mission will be hugely appreciated.

If you are impacted by mitochondrial disease you can get more information about starting your very own Mito Mission here.

We’re so pleased to be welcoming another new mission to our incredible team- Daniel’s Mito Mission, based in Long Buckby, Northamptonshire!
Daniel’s nan didn’t have good health and we suspect had a form of mitochondrial disease called MIDD, but she was never tested. This led to testing for his mum and uncle, who were both confirmed to have mito when Daniel was around 8 or 9. He was tested at 16 and diagnosed with MELAS (Mitochondrial Encephalomyopathy, Lactic Acidosis, and Stroke-like episodes).
Daniel’s mission is to raise even more awareness and funds to bring hope for treatments and a cure for everyone who is impacted by mitochondrial disease. He’s even planning a skydive in 2025 – so watch this space!
You can read Daniel’s story on his webpage here. Any support for Daniel’s mission will be hugely appreciated!
If you are impacted by mitochondrial disease you can get more information about starting your very own Mito Mission here.

We are honoured to welcome Rory’s Mito Mission, based in St Albans, Hertfordshire, who has joined our Mito Mission family today.

You can read Rory’s story on our webpage where his mum, Pauline, tells of Rory’s diagnosis at a time when mitochondrial disease was much less known of and support was minimal.

Rory sadly died just days before his 10th birthday, leaving behind twins, Gerry and Annie. Annie, now 22 will be running the Oxford Half Marathon raising awareness and funds for mito in Rory’s name. You can read more about her run here.

Any support for Rory’s mission will be hugely appreciated.

If you are impacted by mitochondrial disease you can get more information about starting your very own Mito Mission here.