Thanks to our fabulous supporters, we were delighted to grant funds this year towards enabling mitochondrial disease to be added to the Rudy Study. Check out more about this project on their website.
We’re also very excited to be able to contribute to research about mito and mental health which will begin next year. Both of these through our friends at The Lily Foundation
Our previous grant funding projects through Lily have been a 4-year gene editing research project and a support weekend for young adults affected by mitochondrial disease.
With your amazing help, we’ll continue to raise awareness and hopes of treatments and a cure for mitochondrial disease, and support for those affected.
Can you help bring a smile to Regan?
Regan, is one of our ‘missionees’ form
Regan’s Mito Mission and has had some challenging health issues due to having mito recently – that is sadly bringing upset and distress to his usual smiling face.
It would be a fantastic lift if he could receive some ‘happy mail’ – a card, a note, picture, small gift … anything. He loves to get post! Please send them to Regan c/o My Mito Mission, 44d Long Ridge, Brighouse, HD6 3RZ and we’ll swiftly
Thank you… and thank you to the family’s lovely friend, Margaret for the idea too.
What better way to put our tombola and raffle donations to good use during the pandemic than to parcel some up for families and adults impacted by mito? Over 30 ‘Hug Bundles’ were sent out taking treats to those looking an extended lockdown
This follows our first support project in November 2019 where we were delighted to contribute to the very first support weekend for adults with mitochondrial disease, organised and hosted by The Lily Foundation.
We will continue to bring additional support to as many people as we can.
Our friends at The Lily Foundation are liaising with their medical expert contacts with the aim of bringing mito patients the best advice for staying as safe as possible during the coronavirus pandemic. Please access this site here
The Wellcome Centre for Mitochondrial Research in Newcastle has shared some psychologic advice by Dr Russ Harris for facing Covid19 when shielding under lockdown which you can access here