Why Mito Research Matters To You
PROJECT 1000 STRONG
Donate or Fundraise

Why Mito Research Matters To You
PROJECT 1000 STRONG
Donate or Fundraise

Why Mito Research Matters To You
PROJECT 1000 STRONG
Donate or Fundraise

Author: Joanna Flynn

Danielle’s Mito Mission Launches Today!

Meet Danielle, who we are thrilled has joined us this month – with a brand new Mito Mission based in Dundee, and becomes our fourth mission based in Scotland.

It took Danielle 33 years to get a diagnosis. She is therefore very keen to bring hope and empowerment for anyone still experiencing a lack of diagnosis and a medical wilderness – as well as raise vital awareness for mitochondrial disease.

Read Danielle’s journey with the illness and much more on her mission page here.

Danielle's Mito Mission Launches Today.

Danielle's Mito Mission news imageMeet Danielle, who we are thrilled has joined us this month – with a brand new Mito Mission based in Dundee, and becomes our fourth mission based in Scotland.

It took Danielle 33 years to get a diagnosis. She is therefore very keen to bring hope and empowerment for anyone still experiencing a lack of diagnosis and a medical wilderness – as well as raise vital awareness for mitochondrial disease.

Read Danielle’s journey with the illness and much more on her mission page here.

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Big Push for Mito 2023.

The Big Push for Mito begins in earnest!

Our key event for World Mito Week, 18th – 24th September 2023, will be a fun wheelchair team challenge.
We are inviting teams of 5 to enter and take up the challenge to complete a 6-mile route each taking turns to push and ride in the wheelchair. As well as raising awareness for mitochondrial disease, we will also be highlighting accessibility, invisible illness and occasional wheelchair use.

Whether it’s a team from work, college, family, friends or your local pub… we’d love to have as many teams as possible on this fun challenge helping us raise more mito awareness and funds.

There’s lots more information and registration form on our Big Push webpage.

The Big Push for Mito 2023

Big Push for Mito 2023The Big Push for Mito begins in earnest!

Our key event for World Mito Week, 18th – 24th September 2023, will be a fun wheelchair team challenge taking place on the Sunday morning at My Mito Mission HQ, West Yorkshire..

We are inviting teams of 5 to enter and take up the challenge to complete a 6-mile route each taking turns to push and ride in the wheelchair. As well as raising awareness for mitochondrial disease, we will also be highlighting accessibility, invisible illness and occasional wheelchair use.

Whether it’s a team from work, college, family, friends or your local pub… we’d love to have as many teams as possible on this fun challenge helping us raise more mito awareness and funds.

There’s lots more information and registration form on our Big Push webpage.

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Fly High Beautiful Ronni.

We are devastated to share the news of the passing of one of our ‘missionees’, Ronni, aged just 10 from Ronni & Freddi’s Mito Mission to mitochondrial disease.

Our thoughts are with his loving family – especially mum, Danielle; dad, Keron and sister, Emily.

Even more tragically, Ronni is the second son the family have lost to mito. Danielle and Keron feel very strongly that they do not want others to go through what they are going through. They have set up a tribute fund in honour of Ronni, the proceeds of which will go to Ronni and Freddi’s Mito Mission and to mitochondrial research.

Fly High Beautiful Ronni.

Ronni forever in our hearts - Ronni & Freddi's Mito MissionWe are devastated to share the news of the passing of one of our ‘missionees’, Ronni, aged just 10 from Ronni & Freddi’s Mito Mission to mitochondrial disease.

Our thoughts are with his loving family – especially mum, Danielle; dad, Keron and sister, Emily.

Even more tragically, Ronni is the second son the family have lost to mito. As mitochondrial disease is a genetic illness, it can sadly impact on more than one child in any family.

Danielle and Keron feel very strongly that they do not want others to go through what they are going through. They have set up a tribute fund in honour of Ronni, the proceeds of which will go to Ronni and Freddi’s Mito Mission and to mitochondrial research.

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New Mito Mission – Welcome Alison!

Meet Alison, who we are thrilled has joined us this month – with a brand new Mito Mission based in Barnsley, South Yorkshire

Alison is keen to raise awareness about mitochondrial disease which in turn will help to reduce the isolation that can be felt by people with mito.

Read about Alison’s journey to a mito diagnosis which helped solve some of her family’s medical mysteries.

New Mito Mission - Welcome Alison!

Alison newsMeet Alison, who we are thrilled has joined us this month – with a brand new Mito Mission based in Barnsley, South Yorkshire.

Alison is keen to raise awareness about mitochondrial disease which in turn will help to reduce the isolation that can be felt by people with mito.

Read about Alison’s journey to a mito diagnosis which helped solve some of her family’s medical mysteries.

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Grants Update

Thanks to our fabulous supporters, we were able to contribute to an important new study through our friends at The Lily Foundation. Due to start next month, this study will explore the links between mito and neuropsychiatric diseases – a blanket term that covers a broad range of medical conditions involving neurology and psychiatry.

Read more here about this exciting project which will hopefully lead to improved information, mental health care and treatments for mito patients.

Our previous grant funding projects through Lily have been:
– 4-year gene editing research project
– support weekend for young adults
– enabling mitochondrial disease to become a part of The RUDY Study
… more information on all of these projects through the links.

With your amazing help, we’ll continue to raise awareness and hopes of treatments and a cure for mitochondrial disease, and support for those affected.

Grants Update.

Grants UpdateThanks to our fabulous supporters, we were able to contribute to an important new study through our friends at The Lily Foundation. Due to start next month, this study will explore the links between mito and neuropsychiatric diseases – a blanket term that covers a broad range of medical conditions involving neurology and psychiatry.

Read more here about this exciting project which will hopefully lead to improved information, mental health care and treatments for mito patients. 

Our previous grant funding projects through Lily have been:

With your amazing help, we’ll continue to raise awareness and hopes of treatments and a cure for mitochondrial disease, and support for those affected.

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Season’s Greetings

As we near the end of our third full year, here are our highlights festively themed on the 12 Days of Christmas:
Oh, the year 2020 it brought our charity …

• A wonderful new website
• Our highest ever donation
• Improved social media
• New ways to fundraise
• Awesome volunteering
• Several sponsored challenges
• Six-figure sum reached
• F-I-V-E N-E-W M-I-S-S-I-O-N-S!*
• Forty thousand granted
• Three patrons
• Too much support (to mention )
• … and a web-shop to sell our merchandise!

Everyone at My Mito Mission wishes you all the very best for the Christmas season and for 2021.

Thank you for your valued interest and support.

Seasons Greetings.

Season's Greetings 2020As we near the end of our third full year, it’s a good time to look back and see what we’ve achieved this year despite the challenges it has brought. 

Here are our highlights festively themed on the 12 Days of Christmas:

Oh, the year 2020 it brought our charity …

 

  • A wonderful new website
  • Our highest ever donation
  • Improved social media
  • New ways to fundraise
  • Awesome volunteering
  • Several sponsored challenges
  • Six-figure sum reached
  • F-I-V-E   N-E-W   M-I-S-S-I-O-N-S!
  • Forty thousand granted
  • Three patrons
  • Too much support (to mention)
  • … and a web-shop to sell our merchandise!

 

Everyone at My Mito Mission wishes you all the very best for the Christmas season and for 2021.

Thank you for your valued interest and support.

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Fabulous FUNdraising Friends

Introducing a new way to have fun and raise funds … our new facebook group where, starting January we’re holding a big raffle with great prizes every month, exclusive to group members.

Make a donation and make a difference to mito research. If yours is one of the lucky numbers – win a fantastic prize too!
Please join us today … there’s never any obligation to participate …. but every good reason to be one of our Fabulous FUNdraising Friends and help us raise hopes of a cure for mito!

Fabulous FUNdraising Friends.

FUNdraising FriendsIntroducing a new way to have fun and raise funds … our new facebook group where, starting January we’re holding a big raffle with great prizes every month, exclusive to group members.

Make a donation and make a difference to mito research. If yours is one of the lucky numbers – win a fantastic prize too!

Please join us today … there’s never any obligation to participate …. but every good reason to be one of our Fabulous FUNdraising Friends and help us raise hopes of a cure for mito.

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Online Shop

We now have a shop!
Lots of great items from clothing to face masks to help you – to help us – raise awareness and a little bit of funds. Check it out … and maybe check something out too!

Online Shop.

Shop Now OpenWe now have a shop!

Lots of great items from clothing to face masks to help you – to help us – raise awareness and a little bit of funds.

Check it out … and maybe check something out too!

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Grants Update

Thanks to our fabulous supporters, we were delighted to grant funds this year towards enabling mitochondrial disease to be added to the Rudy Study. Check out more about this project on their website.
We’re also very excited to be able to contribute to research about mito and mental health which will begin next year. Both of these through our friends at The Lily Foundation

Our previous grant funding projects through Lily have been a 4-year gene editing research project and a support weekend for young adults affected by mitochondrial disease.
With your amazing help, we’ll continue to raise awareness and hopes of treatments and a cure for mitochondrial disease, and support for those affected.

Grants Update.

Grants UpdateThanks to our fabulous supporters, we were delighted to grant funds this year towards enabling mitochondrial disease to be added to the Rudy Study. Check out more about this project on their website.

We’re also very excited to be able to contribute to research about mito and mental health which will begin next year. Both of these through our friends at The Lily Foundation

Our previous grant funding projects through Lily have been a 4-year gene editing research project and a support weekend for young adults affected by mitochondrial disease.

With your amazing help, we’ll continue to raise awareness and hopes of treatments and a cure for mitochondrial disease, and support for those affected.

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Ronni & Freddi’s Mito Mission Launch

Delighted that this month is seeing us welcome a new mission – Ronni & Freddi’s.

Ronni & Freddi are brothers and have been affected in very different ways with mitochondrial disease. Ronni is eight and doing well, but tragically for little Freddi, it was severely
life limiting.

As part of Freddi’s legacy, his family have joined us with their own mission, based in King’s Lynn, Norfolk to help raise awareness, support and funds for research for everyone affected.
Please take a little time to read about the family’s journey with mito on Ronni & Freddi’s webpage

Ronni & Freddi's New Mito Mission Launch.

Ronni & Freddi's Mission Launch Nov20Delighted that this month is seeing us welcome a new mission – Ronni & Freddi’s.

Ronni & Freddi are brothers and have been affected in very different ways with mitochondrial disease. Ronni is eight and doing well, but tragically for little Freddi, it was severely life limiting.

As part of Freddi’s legacy, his family have joined us with their own mission, based in King’s Lynn, Norfolk to help raise awareness, support and funds for research for everyone affected.

Please take a little time to read about the family’s journey with mito on Ronni & Freddi’s webpage

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