Come along and have a fantastic night and be amongst the first to attend a My Mito Mission Ball.
Yes, our first ever charity ball will take place in April, tickets available now. Please check out all the details below.
Come along and have a fantastic night and be amongst the first to attend a My Mito Mission Ball.
Yes, our first ever charity ball will take place in April with a fun Yorkshire theme. Tickets available now.
Please check out all the details below.
We ‘ope to sithi on t’night … it’ll be a reyt good do!
Last weekend’s get together for our missionees, charity volunteers and top mitochondrial researcher Professor Kostas Tokatlidis truly showed the value of bringing patients and professionals together. Not only did it give those impacted by mitochondrial disease the chance to hear about developments in research, it also bought an unexpected and amazing result.
Professor Tokatlidis has studied a key mitochondrial protein (called GFER) for 15 years. GFER is one of almost 1500 genes linked to mitochondrial disease. The condition associated with GFER mutations is extremely rare, but one which potentially has wide implications for progress across mitochondrial function as a whole. Just a handful of families in the world are affected by this gene fault – with just one family in the UK to the scientist’s knowledge, none of whom were known to him.
Eddie Wall, who runs his Mito Mission in Leeds took the opportunity to speak with Professor Tokatlidis on Saturday evening. Through this chat, it was discovered that Eddie and his brother John are that very family.
‘It’s both an incredible coincidence and extremely exciting that I have connected with Eddie and his family’, said the Professor. ‘To be able to work directly with a patient has the potential to significantly advance our research and showcases how we can work together to maximise patient involvement and engagement in a very meaningful and impactful manner.’ Whilst Eddie added, ‘Research is hope to mito patients. I’ve wanted to play as big a role as I can for a long time and to have this opportunity occur is amazing. And on my birthday too!’
We are beyond thrilled that our first ever My Mito Meet-Up bought about this incredible connection which has the potential to advance mito research – something which brings hope to everyone impacted by mitochondrial disease.
Last weekend’s get together for our missionees, charity volunteers and top mitochondrial researcher Professor Kostas Tokatlidis truly showed the value of bringing patients and professionals together. Not only did it give those impacted by mitochondrial disease the chance to hear about developments in research, it also bought an unexpected and amazing result.
Professor Tokatlidis has studied a key mitochondrial protein called GFER for 15 years. GFER is one of almost 1500 genes linked to mitochondrial disease. The condition associated with GFER mutations is extremely rare, but one which potentially has wide implications for progress across mitochondrial function as a whole. Just a handful of families in the world are affected by this gene fault – with just one family in the UK to the scientist’s knowledge, none of whom were known to him.
Eddie Wall, who runs his Mito Mission in Leeds took the opportunity to speak with Professor Tokatlidis on Saturday evening. Through this chat, it was discovered that Eddie and his brother John are that very family.
‘It’s both an incredible coincidence and extremely exciting that I have connected with Eddie and his family’, said the Professor. ‘To be able to work directly with a patient has the potential to significantly advance our research and showcases how we can work together to maximise patient involvement and engagement in a very meaningful and impactful manner.’ Whilst Eddie added, ‘Research is hope to mito patients. I’ve wanted to play as big a role as I can for a long time and to have this opportunity occur is amazing. And on my birthday too!’
We are beyond thrilled that our first ever My Mito Meet-Up bought about this incredible connection which has the potential to advance mito research – something which brings hope to everyone impacted by mitochondrial disease.
Our 1st My Mito Mission meet-up – a get together for our missionees around the UK – took place this weekend and was a huge success.
A visit to Cannon Hall Farm, Barnsley on Saturday was followed by a social on Saturday evening at the Cedar Court Hotel, Huddersfield featuring a talk by top mitochondrial researcher Professor Kostas Tokatlidis from Glasgow University.
Sunday saw everyone – including staff, trustees and volunteers – get some inspiration on how we can together raise even more vital awareness and funds for research.
“It was just magical to see so many of our missions able to get together in person”, says Christine Beal, Chair of Trustees and lead for Emma’s Mito Mission. “Some very precious memories were made and friendships forged to last a lifetime”.
We can safely say that the My Mito Meet-Up 2022 was a massive success. A huge thanks, as ever, goes to each and every supporter for making events like this possible.
Our first My Mito Mission meet-up – a get together for our missionees around the UK – took place this weekend and was a huge success.
A visit to Cannon Hall Farm, Barnsley on Saturday was followed by a social on Saturday evening at the Cedar Court Hotel, Huddersfield featuring a talk by top mitochondrial researcher Professor Kostas Tokatlidis from Glasgow University.
Sunday saw everyone – including staff, trustees and volunteers – get some inspiration on how we can together raise even more vital awareness and funds for research.
“It was just magical to see so many of our missions able to get together in person”, says Christine Beal, Chair of Trustees and lead for Emma’s Mito Mission. “Some very precious memories were made and friendships forged to last a lifetime”.
We can safely say that the My Mito Meet-Up 2022 was a massive success. A huge thanks, as ever, goes to each and every supporter for making events like this possible.
The My Mito Meet-Up 2022 is underway!!
For the first time since the charity’s inception in 2017, our missions from around the UK are getting together for a wonderful weekend of fun, socialising and above all, support and new friendships.
Just one of the support projects we have been able to complete thanks to our fabulous supporters. More news of the weekend to follow soon!
The My Mito Meet-Up 2022 is underway!!
For the first time since the charity’s inception in 2017, our missions from around the UK are getting together for a wonderful weekend of fun, socialising and above all, support and new friendships.
Just one of the support projects we have been able to complete thanks to our fabulous supporters. More news of the weekend to follow soon!
Buildings and landmarks around the world are joining us in raising some spectacular awareness by lighting up green tomorrow to bring a brilliant close to World Mito Week.
If you would like to know which buildings will be lit around the UK – and around the globe – see this map. Do you know any buildings or landmarks that may light up next year?
Please contact us.
Buildings and landmarks around the world are joining us in raising some spectacular awareness by lighting up green tomorrow to bring a brilliant close to World Mito Week.
If you would like to know which buildings will be lit around the UK – and around the globe – see this map. Do you know any buildings or landmarks that may light up next year?
Please contact us.
World Mitochondrial Disease Week starts today and ends on Saturday 24th September.
As part of our contribution, we are excited to quote experts from the worlds of medicine and science to confirm our key message that ‘Mito Research Matters to Millions.’
Please read the social media posts below to find out what these well respected experts have to say about the importance of mitochondrial research not solely for mitochondrial disease – but for MANY other conditions.
World Mitochondrial Disease Week starts today and ends on Saturday 24th September.
As part of our contribution, we are excited to quote experts from the worlds of medicine and science to confirm our key message that ‘Mito Research Matters to Millions.’
Please read the social media posts below to find out what these well respected experts have to say about the importance of mitochondrial research not solely for mitochondrial disease – but for many other conditions.
When you are a Mito Mission based in Sheffield, what else are you going to do for your first big event but a Full Monty For Mito!
Lillia’s Dad Matt and his mates bared all at an event organised by mum, Emma which raised an amazing £4000 in funds for Lillia’s Mito Mission and priceless awareness. Including a terrific tweet supporting the event from Robert Caryle, currently filming a brand new series featuring the original cast.
Hats off to you all!!!
When you are a Mito Mission based in Sheffield, what else are you going to do for your first big event but a Full Monty For Mito!
Lillia’s Dad Matt and his mates bared all at an event organised by mum, Emma which raised an amazing £4000 in funds for Lillia’s Mito Mission and priceless awareness. Including a terrific tweet supporting the event from Robert Caryle, currently filming a brand new series featuring the original cast.
Hats off to you all!!!
It is great to see our missions back out and about raising awareness and funds post pandemic.
Thanks to the easing of restrictions we are thrilled to be attending some great events – from festivals to fun days, from table top sales to tombolas.
Not only are we out and about as My Mito Mission, but our individual missions around the UK are also now able to promote their missions again.
Pictured are Emma’s Mito Mission at Brodstock, Halifax; Steph & Jake’s Mito Mission at Thurston Co Op; Lillia’s Mito Mission at The Beagle Pub, Sheffield and Regan’s Mito Mission at CNC Dance, Cradley Heath.
It is great to see our missions back out and about raising awareness and funds post pandemic.
Thanks to the easing of restrictions we are thrilled to be attending some great events – from festivals to fun days, from table top sales to tombolas. Not only are we out and about as My Mito Mission, but our individual missions around the UK are also now able to promote their missions again.
Pictured are Emma’s Mito Mission at Brodstock, Halifax; Steph & Jake’s Mito Mission at Thurston Co Op; Lillia’s Mito Mission at The Beagle Pub, Sheffield and Regan’s Mito Mission at CNC Dance, Cradley Heath.
Events are back with a bang … or should we say with a big drop?!?
Our spectacular fundraiser this year will be an abseil at the iconic Wainhouse Tower, Halifax.
A rare opportunity for the daring to climb the 403 steps up the tallest folly in the world. Then abseil the 275 foot drop – taking in the most spectacular Yorkshire view. All whilst raising awareness and funds for our fantastic cause.
Would-be participants can register their interest here.
Image by @yorkshirefrontiers
Events are back with a bang … or should we say with a big drop?!?
Our spectacular fundraiser this year will be an abseil at the iconic Wainhouse Tower, Halifax, West Yorkshire on Saturday 16th July.
A rare opportunity for the daring to climb the 403 steps up the tallest folly in the world. Then abseil the 275 foot drop – taking in the most spectacular Yorkshire view. All whilst raising awareness and funds for our fantastic cause.
Would-be participants can register their interest here.
Wainhouse Tower image by @yorkshirefrontiers
Please join us and enjoy this wonderful online variety show THIS Friday 12th June at 7.30pm.
It’s been put together by our fabulous and fun patron Neil Hurst and features a whole host of wonderful entertainment. From one-man clarinet quartets to acoustic guitarists, from vintage vocal trios to musical theatre performers, brass bands to comedy … it has it all, and much, much more.
And all helping to raise awareness and funds for mito. Please tell your friends – and don’t miss it!
Please join us and enjoy this wonderful online variety show THIS Friday 12th June at 7.30pm.
It’s been put together by our fabulous and fun patron Neil Hurst and features a whole host of wonderful entertainment. From one-man clarinet quartets to acoustic guitarists, from vintage vocal trios to musical theatre performers, brass bands to comedy … it has it all, and much, much more.
And all helping to raise awareness and funds for mito. Please tell your friends – and don’t miss it!
