We are delighted to welcome Milanna’s Mito Mission based in Nottingham to our My Mito Mission family.
Beautiful Milanna has just turned 1 and was recently diagnosed with a rare variant of mitochondrial disease. Her loving mum Reanna and dad Malaky are determined to ensure Milanna’s best hope of treatments which may extend her life.
You can read Milanna’s story on her webpage or visit her JustGiving page to make a donation.
We are delighted to welcome Milanna’s Mito Mission based in Nottingham to our My Mito Mission family.
Beautiful Milanna has just turned 1 and was recently diagnosed with a rare variant of mitochondrial disease. Her loving mum Reanna and dad Malaky are determined to ensure Milanna’s best hope of treatments which may extend her life.
You can read Milanna’s story on her webpage or visit her JustGiving page to make a donation.
We have real cause for celebration this month as we have reached 20 Mito Missions around the UK!
From Perthshire to Suffolk, from Belfast to West Midlands, every new mission means more vital awareness being spread by affected families.
Each mission is a mini charity in their own right, raising awareness, funds and hopes of a cure for everyone.
Check out our 20 terrific current missions. Affected by Mito? Find out more about starting your own Mito Mission here.
Looking forward to launching our next 20 missions to join us in spreading the word that Mito Matters to Millions.
We have real cause for celebration this month as we have reached 20 Mito Missions around the UK!
From Sheffield to Suffolk, from Lancashire to Lanarkshire, West Yorkshire to West Midlands … every new mission means more vital awareness being spread by affected families. Each mission is a mini charity in their own right, raising awareness, funds and hopes of a cure for everyone.
Check out our 20 current missions.
Affected by Mito? Find out more about starting your own Mito Mission here.
We are looking forward to launching our next 20 missions to join us in spreading the word that Mito Matters to Millions.
We are honoured to welcome Shania’s Mito Mission to our My Mito Mission family.
Incredibly sadly, Shania passed away in May 2020 aged just 20. It was only through Shania’s death that her mum, Julie eventually discovered that the whole family was impacted by mitochondrial disease.
You can read Shania’s on her webpage or visit her JustGiving page. Any support for her mission will be hugely appreciated.
We are honoured to welcome Shania’s Mito Mission to our My Mito Mission family, based in Hemsworth, West Yorkshire.
Incredibly sadly, Shania passed away in May 2020 aged just 20. It was only through Shania’s death that her mum, Julie eventually discovered that the whole family was impacted by mitochondrial disease.
You can read Shania’s story on her webpage or visit her JustGiving page. Any support for her mission will be hugely appreciated.
My Mito Mission has upgraded our ebay presence to a shop making it much easier to make your purchases while supporting our vital cause.
From books to jigsaws, from collectables to toileteries and perfume, from bric a brac to household and electrical, we have a fab range for you to have a look around.
Have a hop around our shop
My Mito Mission has upgraded our ebay presence to a shop making it much easier to make your purchases while supporting our vital cause.
From books to jigsaws, from collectables/vintage to toileteries and perfume, from bric a brac to household and electrical, we have a fab range for you to have a look around.
Have a hop around our shop – with ALL proceeds to raise hopes of treatments and a cure for mitochondrial disease.
If you have anything that you can donate to our ebay shop, please check out what we are looking for here.
It is with incredibly heavy hearts that we share the news that beautiful Brody – one of our missionees – lost his life to mito on 16th February.
Our thoughts and hearts are with Brody’s loving mum, Donna and brother, Declan.
This shows the reality of mitochondrial disease and just how truly devastating it can be.
Fly high little man.
If you’d like to contribute to Brody’s funeral fund please do so here.
It is with incredibly heavy hearts that we share the news that beautiful Brody – one of our missionees – lost his life to mito on 16th February, just months before his second birthday.
Our thoughts and hearts are with Brody’s loving mum, Donna and brother, Declan.
This shows the reality of mitochondrial disease and just how truly devastating it can be.
Fly high little man 💚
If you’d like to contribute to Brody’s funeral fund please do so here.
Meet Lucas, who we are thrilled has joined us this month – with a brand new Mito Mission based in Middleton, Leeds.
Lucas’s family want to raise awareness, funds for research and hopes of a cure for everyone affected by Mitochondrial Disease. ‘Having a child with mito can be very mentally and emotionally tough’, says Danni, Lucas’s mum. ‘his mission will be a fab positive focus and a great way to make a difference’.
Read Lucas’s journey with the illness and much more on his mission page.
Meet Lucas, who we are thrilled has joined us this month – with a brand new Mito Mission based in Middleton, Leeds.
Lucas’s family want to raise awareness, funds for research and hopes of a cure for everyone affected by Mitochondrial Disease. ‘Having a child with mito can be very mentally and emotionally tough’, says Danni, Lucas’s mum. ‘his mission will be a fab positive focus and a great way to make a difference’.
Read Lucas’s journey with the illness and much more on his mission page.
Last year proved to be a wonderful year for our charity. Of course, it was not without its devastation, as we lost one of our precious missionees, Regan in February.
In tribute to Regan and all the others lost to mito before him we carry on our mission with them all in our hearts.
Highlights of 2022 include:
8 new missions
Our best ever fundraising total
Our very first My Mito Meet Up
Breaking the £100k barrier awarded to research
… but there was an incredible amount more that we achieved with thanks to you, our supporters.
Let’s go from strength to strength in 2023!
Last year proved to be a wonderful year for our charity. Of course, it was not without its devastation, as we lost one of our precious missionees, Regan in February.
In tribute to Regan and all the others lost to mito before him, we carry on our mission with them all in our hearts.
Highlights of 2022 include:
– 8 new missions
– Our best ever annual fundraising total
– Our very first My Mito Meet Up
– Breaking the £100k barrier awarded to research
… but there was an incredible amount more that we achieved with thanks to you, our supporters. Let’s go from strength to strength in 2023!
Meet Rhona, who we are thrilled has joined us this month – with a brand new Mito Mission based in Elderslie, Renfrewshire.
Rhona is keen to raise awareness about mitochondrial disease especially amongst her fellow medical professionals
Read about Rhona’s long journey to a mito diagnosis and much more on her mission page.
Meet Rhona, who we are thrilled has joined our team of missions around the UK this month – with a brand new Mito Mission based in Elderslie, Renfrewshire.
Rhona is keen to raise awareness about mitochondrial disease … especially amongst her fellow medical professionals.
Read about Rhona’s long journey to a mito diagnosis and much more on her mission page.
Leaflets are still very much an important part of awareness-raising. We are delighted to introduce our new charity leaflet which features all our missions, information about mitochondrial disease and the importance of mitochondrial research too MANY other common conditions.
We are also thrilled that Professor Kostas Tokatlidis, Director of Research at University of Glasgow has agreed to feature in our leaflet and help us deliver the vital message that ‘Mito Research Matters to Millions’.
Any of our charity leaflets are available on request, just contact us.
Leaflets are still very much an important part of awareness-raising. So, we are delighted to introduce our new charity leaflet – which features all our missions around the UK, information about mitochondrial disease and the importance of mitochondrial research too MANY other common conditions.
We are also thrilled that Professor Kostas Tokatlidis, Director of Research at University of Glasgow has agreed to feature in our leaflet and help us deliver the vital message that ‘Mito Research Matters to Millions’.
Any of our charity leaflets are available on request, just contact us.
Last weekend’s get together for our missionees, charity volunteers and top mitochondrial researcher Professor Kostas Tokatlidis truly showed the value of bringing patients and professionals together. Not only did it give those impacted by mitochondrial disease the chance to hear about developments in research, it also bought an unexpected and amazing result.
Professor Tokatlidis has studied a key mitochondrial protein (called GFER) for 15 years. GFER is one of almost 1500 genes linked to mitochondrial disease. The condition associated with GFER mutations is extremely rare, but one which potentially has wide implications for progress across mitochondrial function as a whole. Just a handful of families in the world are affected by this gene fault – with just one family in the UK to the scientist’s knowledge, none of whom were known to him.
Eddie Wall, who runs his Mito Mission in Leeds took the opportunity to speak with Professor Tokatlidis on Saturday evening. Through this chat, it was discovered that Eddie and his brother John are that very family.
‘It’s both an incredible coincidence and extremely exciting that I have connected with Eddie and his family’, said the Professor. ‘To be able to work directly with a patient has the potential to significantly advance our research and showcases how we can work together to maximise patient involvement and engagement in a very meaningful and impactful manner.’ Whilst Eddie added, ‘Research is hope to mito patients. I’ve wanted to play as big a role as I can for a long time and to have this opportunity occur is amazing. And on my birthday too!’
We are beyond thrilled that our first ever My Mito Meet-Up bought about this incredible connection which has the potential to advance mito research – something which brings hope to everyone impacted by mitochondrial disease.
Last weekend’s get together for our missionees, charity volunteers and top mitochondrial researcher Professor Kostas Tokatlidis truly showed the value of bringing patients and professionals together. Not only did it give those impacted by mitochondrial disease the chance to hear about developments in research, it also bought an unexpected and amazing result.
Professor Tokatlidis has studied a key mitochondrial protein called GFER for 15 years. GFER is one of almost 1500 genes linked to mitochondrial disease. The condition associated with GFER mutations is extremely rare, but one which potentially has wide implications for progress across mitochondrial function as a whole. Just a handful of families in the world are affected by this gene fault – with just one family in the UK to the scientist’s knowledge, none of whom were known to him.
Eddie Wall, who runs his Mito Mission in Leeds took the opportunity to speak with Professor Tokatlidis on Saturday evening. Through this chat, it was discovered that Eddie and his brother John are that very family.
‘It’s both an incredible coincidence and extremely exciting that I have connected with Eddie and his family’, said the Professor. ‘To be able to work directly with a patient has the potential to significantly advance our research and showcases how we can work together to maximise patient involvement and engagement in a very meaningful and impactful manner.’ Whilst Eddie added, ‘Research is hope to mito patients. I’ve wanted to play as big a role as I can for a long time and to have this opportunity occur is amazing. And on my birthday too!’
We are beyond thrilled that our first ever My Mito Meet-Up bought about this incredible connection which has the potential to advance mito research – something which brings hope to everyone impacted by mitochondrial disease.
