Meet-Up Proves Magical

Our 1st My Mito Mission meet-up – a get together for our missionees around the UK – took place this weekend and was a huge success.

A visit to Cannon Hall Farm, Barnsley on Saturday was followed by a social on Saturday evening at the Cedar Court Hotel, Huddersfield featuring a talk by top mitochondrial researcher Professor Kostas Tokatlidis from Glasgow University.

Sunday saw everyone – including staff, trustees and volunteers – get some inspiration on how we can together raise even more vital awareness and funds for research.

“It was just magical to see so many of our missions able to get together in person”, says Christine Beal, Chair of Trustees and lead for Emma’s Mito Mission. “Some very precious memories were made and friendships forged to last a lifetime”.

We can safely say that the My Mito Meet-Up 2022 was a massive success. A huge thanks, as ever, goes to each and every supporter for making events like this possible.

First Ever My Mito Meet Up.

My Mito Meetup Cannon Hall Trip 2022Our first My Mito Mission meet-up – a get together for our missionees around the UK – took place this weekend and was a huge success.

A visit to Cannon Hall Farm, Barnsley on Saturday was followed by a social on Saturday evening at the Cedar Court Hotel, Huddersfield featuring a talk by top mitochondrial researcher Professor Kostas Tokatlidis from Glasgow University.

Sunday saw everyone – including staff, trustees and volunteers – get some inspiration on how we can together raise even more vital awareness and funds for research.

“It was just magical to see so many of our missions able to get together in person”, says Christine Beal, Chair of Trustees and lead for Emma’s Mito Mission. “Some very precious memories were made and friendships forged to last a lifetime”.

We can safely say that the My Mito Meet-Up 2022 was a massive success. A huge thanks, as ever, goes to each and every supporter for making events like this possible.

First Ever My Mito Meet Up!!

The My Mito Meet-Up 2022 is underway!!

For the first time since the charity’s inception in 2017, our missions from around the UK are getting together for a wonderful weekend of fun, socialising and above all, support and new friendships.

Just one of the support projects we have been able to complete thanks to our fabulous supporters. More news of the weekend to follow soon!

First Ever My Mito Meet Up.

My Mito Meetup 2022 WeekendThe My Mito Meet-Up 2022 is underway!!

For the first time since the charity’s inception in 2017, our missions from around the UK are getting together for a wonderful weekend of fun, socialising and above all, support and new friendships.

Just one of the support projects we have been able to complete thanks to our fabulous supporters. More news of the weekend to follow soon!

New Home For Our Charity

We have a new home!

My Mito Mission is now based in fabulous new offices KT Hydraulics Ltd in Elland, West Yorkshire. The facilities are a wonderful corporate donation, for which we are extremely grateful.

Our thanks to Richard, Roger and team for being our wonderful hosts, you are absolute ‘Mito Heroes’.

New Home For Our Charity.

My Mito Mission move!We have a fantastic new home!

My Mito Mission is now based in fabulous new offices KT Hydraulics Ltd in Elland, West Yorkshire. The facilities are a wonderful corporate donation, for which we are extremely grateful.

Our thanks to Richard, Roger and team for being our wonderful hosts, you are absolute ‘Mito Heroes’.

A Further £40,000 Granted To Research.

We are delighted to have just contributed a fantastic £40,000 to support two excellent research projects through our friends at The Lily Foundation …

1. Deoxynucleoside-based treatment for Mitochondrial DNA Depletion & Deletions Syndromes.

2. EMERALD Pilot study: Evaluating the Tolerability and Efficacy of a Remote Microphone (Assisted Listening Device) in Adult Patients with Mitochondrial Disease.

More information can be read here.

We are grateful to each and every one of our supporters who make grants like this possible.

My Mito Mission Grants £40,000 To Research.

Grants News ImageWe are delighted to have just contributed a fantastic £40,000 to support two excellent research projects through our friends at The Lily Foundation …

1. Deoxynucleoside-based treatment for Mitochondrial DNA Depletion & Deletions Syndromes.

2. EMERALD Pilot study: Evaluating the Tolerability and Efficacy of a Remote Microphone (Assisted Listening Device) in Adult Patients with Mitochondrial Disease.

More information can be read here.

We are grateful to each and every one of our supporters who make grants like this possible.

Louise’s Mito Mission is Launched

Meet Louise, who we are thrilled has joined us this month – with a brand new Mito Mission based in Sheffield.

Louise wants to increase people’s understanding of mitochondrial disease and how it impacts people differently. Louise also wants to raise funds for Mitochondrial research and hopes that this could bring treatments for common linked illness like cancer, as both have affected her family so much.

Read Louise’s journey with the illness and much more on her mission page here.

Louise's Mito Mission is Launched!

Louise's Mito Mission Launch 28 Aug 2022Meet Louise, who we are thrilled has joined us this month – with a brand new Mito Mission based in Sheffield. 

 
Louise wants to increase people’s understanding of mitochondrial disease and how it impacts people differently.  Louise also wants to raise funds for Mitochondrial research and hopes that this could bring treatments for common linked illness like cancer, as both have affected her family so much.
 
Read Louise’s journey with the illness and much more on her mission page here.

New Mito Mission – Welcome Susan!

Meet Susan, who we are thrilled has joined us this month – with a brand new Mito Mission based in Cumbernauld.

Susan wants to raise awareness, funds for research and hopes of a cure for everyone affected by Mitochondrial Disease. She is also keen to raise awareness of occasional wheelchair use.

Read Susan’s journey with the illness and much more on her mission page here.

New Mito Mission - Welcome Susan!

Susan's Mission Launch 2Aug22Meet Susan, who we are thrilled has joined us this month – with a brand new Mito Mission based in Cumbernauld.

Susan wants to raise awareness, funds for research and hopes of a cure for everyone affected by Mitochondrial Disease. She is also keen to raise awareness of occasional wheelchair use.

Read Susan’s journey with the illness and much more on her mission page here.

Emily’s Mito Mission is Launched

We are honoured to welcome Emily’s Mito Mission to our My Mito Mission family.

Incredibly sadly, Emily passed away in November 2021 aged just 5. Her loving family are launching her mission as a tribute and legacy to a very special little girl today, on what would have been Emily’s 6th birthday.

You can read Emily’s story with mitochondrial disease on her webpage or visit her JustGiving page.

Emily's New Mito Mission is Launched.

We are honoured to welcome Emily’s Mito Mission to our My Mito Mission family.

Incredibly sadly, Emily passed away in November 2021 aged just 5. Her loving family are launching her mission as a tribute and legacy to a very special little girl today, on what would have been Emily’s 6th birthday.

You can read Emily’s journey with a rare form of mitochondrial disease called Pearson Syndrome on her webpage or visit her JustGiving page.

New Mito Mission – Welcome Brody!

A very warm welcome to Brody from Stockport, Greater Manchester who has joined us to raise awareness of mitochondrial disease by having his own mission.

Brody and his family live with the impact of mito every day and any support for his mission will be very welcome.

We are an ‘umbrella’ charity – so whether you support My Mito Mission as a whole or any individual mission – it’s all one great cause!

Please check out Brody’s mission page.

New Mito Mission - Welcome Brody!

Brody's Mito Mission News ImageA very warm welcome to Brody from Stockport, Greater Manchester who has joined us to raise awareness of mitochondrial disease by having his own mission.

Brody and his family live with the impact of mito every day and any support for his mission will be very welcome.

We are an ‘umbrella’ charity – so whether you support My Mito Mission as a whole or any individual mission – it’s all one great cause!

Please check out Brody’s mission page. 

 

Trustee Team Grows

As the charity grows our team of trustees has also grown.

Amanda Cauldwell joined us in March last year and Graham Wright in January this year.

We are also excited to announce that Francessca Sevilla-Rebelderia has become our latest trustee just last month.

All these trustees bring a wealth of experience and expertise to add to our dedicated and enthusiastic team.

Trustee Team Grows!

My Mito Mission New TrusteesAs the charity grows our team of trustees has also grown.

Amanda Caldwell joined us in March last year and Graham Wright in January this year.

We are also excited to announce that Francessca Sevilla-Rebelderia has become our latest trustee just last month.

All these trustees bring a wealth of experience and expertise to add to our dedicated and enthusiastic team.

My Mito Missionee Meet-Up 2022

A massive thank you to all of our amazing supporters and missionees, whose support means that for the first time, we are able to have a My Mito Missionee Meet Up!!

This will be a wonderful opportunity for our missionees to get together, socialise and get inspiration from each other.

It is going to be in West Yorkshire, in mid October and we plan to share lots of photos and news from this very special event.

My Mito Missionee Meet-Up!

My Mito Mission Meet up - NewsA massive thank you to all of our amazing supporters and missionees, whose support means that for the first time, we are able to have a My Mito Missionee Meet Up!!

This will be a wonderful opportunity for our missionees to get together, socialise and get inspiration from each other. It is going to be in West Yorkshire, in mid-October and we plan to share lots of photos and news from this very special event.