Category: Missions

Today we welcome Katie’s Mito Mission based in Nottingham. Lovely little Katie has five older siblings who are all healthy and show no signs of mitochondrial disease, which made the news of Katie’s diagnosis all the more shocking for her parents, Elaine and Leigh.

Katie’s Mission is our second that is Nottingham based and the two families are finding it a comfort to know each other.

You can read Katie’s story on her webpage which illustrates how frustrating the family’s journey to diagnosis was and how they want other people’s diagnosis story to be much simpler.

Huge welcome to Katie and family.

We are wishing both a happy 1st birthday and a warm welcome to our My Mito Mission family to gorgeous little Kane.

Kane and his family are based in Greenwich, London and are very keen to raise awareness about mitochondrial disease and so have launched their mission today.

They will be grateful for any support for Kane’s Mito Mission. Please read his story and check out all the ways to help on his webpage.

We are devastated to share the news of the passing of one of our ‘missionees’, Ronni, aged just 10 from Ronni & Freddi’s Mito Mission to mitochondrial disease.

Our thoughts are with his loving family – especially mum, Danielle; dad, Keron and sister, Emily.

Even more tragically, Ronni is the second son the family have lost to mito. Danielle and Keron feel very strongly that they do not want others to go through what they are going through. They have set up a tribute fund in honour of Ronni, the proceeds of which will go to Ronni and Freddi’s Mito Mission and to mitochondrial research.

Ella’s mission will be run by her parents in Bristol and her grandparents in Huddersfield and we are sure they will get some great support from the north to the south!

You can read Ella’s story on her webpage which poignantly illustrates the vital importance of mitochondrial research.

Meet Alison, who we are thrilled has joined us this month – with a brand new Mito Mission based in Barnsley, South Yorkshire

Alison is keen to raise awareness about mitochondrial disease which in turn will help to reduce the isolation that can be felt by people with mito.

Read about Alison’s journey to a mito diagnosis which helped solve some of her family’s medical mysteries.

We are delighted to welcome Milanna’s Mito Mission based in Nottingham to our My Mito Mission family.

Beautiful Milanna has just turned 1 and was recently diagnosed with a rare variant of mitochondrial disease. Her loving mum Reanna and dad Malaky are determined to ensure Milanna’s best hope of treatments which may extend her life.

You can read Milanna’s story on her webpage or visit her JustGiving page to make a donation.

We have real cause for celebration this month as we have reached 20 Mito Missions around the UK!

From Perthshire to Suffolk, from Belfast to West Midlands, every new mission means more vital awareness being spread by affected families.

Each mission is a mini charity in their own right, raising awareness, funds and hopes of a cure for everyone.

Check out our 20 terrific current missions. Affected by Mito? Find out more about starting your own Mito Mission here.

Looking forward to launching our next 20 missions to join us in spreading the word that Mito Matters to Millions.

We are honoured to welcome Shania’s Mito Mission to our My Mito Mission family.

Incredibly sadly, Shania passed away in May 2020 aged just 20. It was only through Shania’s death that her mum, Julie eventually discovered that the whole family was impacted by mitochondrial disease.

You can read Shania’s on her webpage or visit her JustGiving page. Any support for her mission will be hugely appreciated.

It is with incredibly heavy hearts that we share the news that beautiful Brody – one of our missionees – lost his life to mito on 16th February.

Our thoughts and hearts are with Brody’s loving mum, Donna and brother, Declan.

This shows the reality of mitochondrial disease and just how truly devastating it can be.

Fly high little man.

If you’d like to contribute to Brody’s funeral fund please do so here.

Meet Lucas, who we are thrilled has joined us this month – with a brand new Mito Mission based in Middleton, Leeds.

Lucas’s family want to raise awareness, funds for research and hopes of a cure for everyone affected by Mitochondrial Disease. ‘Having a child with mito can be very mentally and emotionally tough’, says Danni, Lucas’s mum. ‘his mission will be a fab positive focus and a great way to make a difference’.

Read Lucas’s journey with the illness and much more on his mission page.