George Joins Us as Our 30th Mission!

Today My Mito Mission reaches a new milestone by welcoming our 30th mission George’s Mito Mission, from Knaresborough in North Yorkshire to our My Mito Mission family.

George’s story tells of how their mum was badly affected with mitochondrial disease and how that impacted on the family in many different ways. You can find out much more on George’s webpage.

Unfortunately George’s mum’s journey with mito ended when she passed away in April 2022 not long after their dad died unexpectedly. Now George wants to be a part of raising awareness as a legacy to their mum and dad.

Welcome to our My Mito Mission family George, we are delighted to have you on board.

If you are impacted by mitochondrial disease you can get more information about starting your very own Mito Mission here.

George Joins Us as Our 30th Mission!

George's Mito Mission news imageToday My Mito Mission reaches a new milestone by welcoming our 30th mission George’s Mito Mission, from Knaresborough in North Yorkshire to our My Mito Mission family.

George’s story tells of how their mum was badly affected with mitochondrial disease and how that impacted on the family in many different ways.  Unfortunately George’s mum’s journey with mito ended when she passed away in April 2022 not long after their dad died unexpectedly.

Now George wants to be a part of raising awareness as a legacy to their mum and dad.  You can find out much more on George’s webpage.

Welcome to our My Mito Mission family George, we are delighted to have you on board.

If you are impacted by mitochondrial disease you can get more information about starting your very own Mito Mission here.

Welcoming Emily’s Mito Mission!

Big welcome to Emily, from Sunderland, Tyne & Wear, whose mission starts today.

Emily’s Mito Mission is our first to be based in the North East of the country. Her story shows how mitochondrial disease symptoms can emerge at any age but also how is it possible for some, like Emily, to fight back against those symptoms.

Welcome to our My Mito Mission family Emily, we are thrilled to have you on board.

If you are impacted by mitochondrial disease you can get more information about starting your very own Mito Mission here.

Welcoming Emily's Mito Mission.

Emily's Mito Mission Sunderland news imageBig welcome to Emily, from Sunderland, Tyne & Wear, whose mission starts today.

Emily’s Mito Mission is our first to be based in the North East of the country. Her story shows how mitochondrial disease symptoms can emerge at any age but also how is it possible for some, like Emily, to fight back against those symptoms.

Welcome to our My Mito Mission family Emily, we are thrilled to have you on board.

If you are impacted by mitochondrial disease you can get more information about starting your very own Mito Mission here.

Out and About Summer Fundraising!

Some of our missions have been out and about doing some summer fundraising, and of course awareness raising.

Eddie’s Mito Mission held an awareness stall at Shepley First School with welly wanging and a tombola.

Emily’s Mito Mission had their annual fishing competition and raised lots of awareness and £1057 for mito research! A huge thank you to Waterfront Fisheries and Colin Pang.

Lillia’s Mito Mission held a charity football match in Sheffield with 28 local men taking part. A whopping total of £1836 was raised on the day!

Lucas’s Mito Mission held an awareness stall at Middleton Market in Leeds and had a tombola.

Emma’s Mito Mission held awareness and fundraising stalls at Brodstock Festival and Brighouse Gala with welly wanging, a teddy tombola and a parade.

And finally Aiman’s Mito Mission held a awareness and fundraising stall at Broadway Shopping Centre, Bradford with the help from Rotary Club of Adventurers, Rotary Bradford West and Rotary Community Corps. They had face painting, crafts, henna, origami and a tombola.

Well done to all involved.

Out and About Summer Fundraising

Our missions have been out and about doing some summer fundraising and vital awareness raising!


Eddie’s Mito Mission held an awareness stall at Shepley First School, Huddersfield with welly wanging and a tombola, and Lucas’s Mito Mission held an awareness stall at Middleton Market in Leeds with a tombola too.

Eddie's school fair news image  Middleton market news image

Emily’s Mito Mission had their annual fishing competition and raised lots of awareness and a huge £1057! A huge thank you to Waterfront Fisheries and Colin Pang for facilitating the event, and their ongoing support.

Emily's fishing comp news pic

Lillia’s Mito Mission held a charity football match and community fun day in Sheffield with 28 local men taking part. A whopping total of £1836 was raised on the day!

Lillia's football match news image

Emma’s Mito Mission held awareness and fundraising stalls at Brodstock Festival and Brighouse Gala with welly wanging and a teddy tombola.  They also joined the Brighouse Gala parade and made it to the front page of The Brighouse Echo sporting their bright green mito merch! 

Brodstock festival news image 

And last but not least, Aiman’s Mito Mission held an awareness and fundraising stall at Broadway Shopping Centre, Bradford with help from Rotary Club of Adventurers, Rotary Bradford West and Rotary Community Corps. They had face painting, crafts, henna, origami and a tombola.

A massive well done to all involved.  If you would like to host a stall or event for a mission or the charity as a whole, get in touch and we can provide you with support gear.

Welcome John’s Mito Mission!

Big welcome to John whose mission starts today.
John lives in Batley, West Yorkshire and joins his younger brother Eddie in having a Mito Mission.
John’s story is one of disbelief among medical professionals as a child to finally getting his mitochondrial disease diagnosis as a young adult.
John is very keen to raise mito awareness in the general public but also medical professionals. He believes that the more people who know about mito, the more chance that those impacted will get a diagnosis, and feel much less isolated as a result.
Welcome to our My Mito Mission family John, we are delighted to have you on board.

Welcome John's Mito Mission.

John's Mito Mission news imageBig welcome to John whose mission starts today.

John lives in Batley, West Yorkshire and joins his younger brother Eddie in having a Mito Mission.

John’s story is one of disbelief among medical professionals as a child to finally getting his mitochondrial disease diagnosis as a young adult. John is very keen to raise mito awareness in the general public but also medical professionals. He believes that the more people who know about mito, the more chance that those impacted will get a diagnosis, and feel much less isolated as a result.

Welcome to our My Mito Mission family John, we are delighted to have you on board.

My Mito Notelet Winners!

At our recent My Mito Meet Up we set a challenge for attendees to design a notelet to reflect and promote our charity. And wow, did they come up with some wonderful ideas!

As tricky as it was to choose our winners we finally settled on the stunning designs which will now be featured in our shop.

The first is our logo’s energy bolt drawn by Isabella aged 7, whose dad Eddie leads Eddie’s Mito Mission in Huddersfield. The second is a montage of mito related images created by Mark, Paige’s dad from Paige’s Mito Mission in Belfast.

Congratulations to all our entrants and especially to Isabella and Mark!

My Mito Notelets Winners!

Notelet Cards for sale in our shop

At our recent My Mito Meet Up we set a challenge for attendees to design a notelet to reflect and promote our charity. And wow, did they come up with some wonderful ideas!

As tricky as it was to choose our winners, we finally settled on the 2 stunning designs which will now be featured in our shop.

The first is our logo’s energy bolt drawn by Isabella aged 7, whose dad Eddie leads Eddie’s Mito Mission in Huddersfield. The second is a montage of mito related images created by Mark, Paige’s dad from Paige’s Mito Mission in Belfast.

Congratulations to all our entrants and especially to Isabella and Mark!

Notelet picture

Isabella's Notelet card design - Eddie's Mito Mission Mark's Notelet card design - Paige's Mito Mission

Welcome to Clare’s Mito Mission

Big welcome to Clare whose mission starts today!

Clare lives in Swadlincote, Derbyshire and approaches life with optimism and determination. Her story tells of how mitochondrial disease has impacted Clare and her family and why she wants to advocate for mito as much as she possibly can.

Clare’s mission becomes our 27th mission to be launched and we look forward to many more.

Welcome to our My Mito Mission family.

Welcome to Clare's Mito Mission.

Clare's Mito Mission news imageBig welcome to Clare whose mission starts today!

Clare lives in Swadlincote, Derbyshire and approaches life with optimism and determination and works full time within the NHS. Her story tells of how mitochondrial disease has impacted Clare and her family and why she wants to advocate for mito as much as she possibly can.

Clare’s mission becomes our 27th mission to be launched and we look forward to many more.  Welcome to our My Mito Mission family, Clare.

Marvellous My Mito Meet-Up 2023!

Our missionees from around the UK came together at the Holiday Inn, Brighouse for our second annual ‘meet up’ on Friday 13th, Saturday 14th and Sunday 15th October.

We had an amazing time making new connections, renewing existing friendships, gaining new insights, creating awareness-raising resources, getting inspired and of course having fun along the way.

We were delighted to be awarded a fabulous £10,000 from the National Lottery Community Fund to help make it happen.

Over the weekend we held three informative workshops on the subjects of bereavement, research and the medical aspects of mito.

Our bereavement workshop enabled those families who have lost loved ones to mitochondrial disease to join together in honouring them and explore ways to form continuing bonds going forward. Beautiful lanterns were made in their names along with hearts for our memorial tree – all displayed for the rest of the weekend in our poignant remembrance area.

The research workshop was headed up by Professor Kostas Tokatlidis accompanied by Fara Van Der Schans both from the team at the School of Molecular Biosciences, University of Glasgow. Attendees were able to hear information and updates on research into mitochondrial disease and mitochondrial dysfunction – and its potential to bring breakthroughs for many common conditions as well as mito. A Q&A rounded off a fascinating and all-too-short hour.

Our medical workshop was lead by Professor Grainne Gorman and some of her team from The Newcastle Mitochondrial Disease Clinic for Adults and Children – Doctor Yi Ng and Doctor Renae Stefanetti. Mitochondrial disease patients and their families had a valuable and rare opportunity to ask questions in a non-clinical setting with another fascinating question and answer session.

Everyone who attended the workshops were in agreement that they had been a valuable part of the weekend and that much still needed to be done to increase and fast track research and improve medical services.

Marvellous My Mito Meet Up 2023!

cherished connections news imageOur missionees from around the UK came together at the Holiday Inn, Brighouse for our second annual ‘meet up’ on Friday 13th, Saturday 14th and Sunday 15th October.

We had an amazing time making new connections, renewing existing friendships, gaining new insights, creating awareness-raising resources, getting inspired and of course having fun along the way.

We were delighted to be awarded a fabulous £10,000 from the National Lottery Community Fund for our meet up.  Huge thanks to them and all National Lottery players.

Petting zoo and lottery bereavement table and lottery

Over the weekend we held three informative workshops on the subjects of bereavement, research and the medical aspects of mito.

The research workshop was headed up by Professor Kostas Tokatlidis accompanied by Fara Van Der Schans both from the team at the School of Molecular Biosciences, University of Glasgow.   Our medical workshop was lead by Professor Grainne Gorman and some of her team from The Newcastle Mitochondrial Disease Clinic for Adults and Children – Doctor Yi Ng and Doctor Renae Stefanetti.

workshop photo my mito meet up 23

Mitochondrial disease patients and their families had a valuable and rare opportunity to hear information first hand and ask questions.  Everyone who attended the workshops were in agreement that they had been a valuable part of the weekend and that much still needed to be done to increase and fast track research and improve medical services.

Fara and Kostas My Mito Meet Up '23 Grainne Gorman My Mito Meet Up '23

Amongst the many activities to suit all ages was creating our ‘My Mito Montage’.   This is a collaborative piece of art representing our connectedness and feelings about being impacted by mitochondrial disease.  It will be treasured by our charity, kept at our HQ and used to help illustrate our message in the future.  Our montage was made possible by our trustee and co-event organiser, Amanda Caldwell and her fabulous team from The Space at Field Lane.

Danni with montage square Chloe with montage square

My Mito Montage

Our invaluable volunteers – including our terrific trustees – worked amazingly hard both before and during the event to make it as magical as possible for everyone attending.  

We also had some very special volunteers who donated their professional services free of charge.  Julie Acton from Clinical Reflexology in Calderdale, Karen Baker of KJB Counselling, Sharon Berry from Alpha Omega Holistics and Howard Pickles from Templars Photography.

Volunteers image news

Having mitochondrial disease can be incredibly isolating when so little is known about it by those around you. That’s why getting everyone together face to face is so important … the peer support that results is priceless.  During our weekend friendships were made and nurtured which will bring people comfort and support in their future journeys dealing with the impacts of mito. 

A picture speaks a thousand words and we hope photos begin to illustrate the precious connections and wonderful memories that we were made at our My Mito Meet Up ’23.

Aiman Rayan Nathan connected news Jake and Alison connection kids playing news imageSabring and Susan news image

We would like to thank all our supporters, without you we wouldn’t be able to do what we do!

My Mito Meet-Up 2023 Coming Soon!

Excitement is building within My Mito Mission as the My Mito Meet Up 2023 approaches, taking place 13-15th October 2023.

During the weekend our missions from around the UK are getting together for a wonderful weekend of fun, socialising and above all, support and new friendships.

Just one of the support projects we have been able to complete thanks to our fabulous supporters. More news of the weekend to follow soon!

My Mito Meet Up 2023 Coming Soon!

My Mito Meet Up 2023 News ImageExcitement is building within My Mito Mission as the My Mito Meet Up 2023 approaches, taking place 13-15th October 2023.

During the weekend, 22 of our missions from around the UK are getting together for a wonderful weekend of fun, learning, socialising and above all, support and new friendships.

Just one of the support projects we have been able to complete thanks to our fabulous supporters … and a huge amount of help from The National Lottery Community Fund.

National Lottery Community Fund logo

Danielle’s Mito Mission Launches Today!

Meet Danielle, who we are thrilled has joined us this month – with a brand new Mito Mission based in Dundee, and becomes our fourth mission based in Scotland.

It took Danielle 33 years to get a diagnosis. She is therefore very keen to bring hope and empowerment for anyone still experiencing a lack of diagnosis and a medical wilderness – as well as raise vital awareness for mitochondrial disease.

Read Danielle’s journey with the illness and much more on her mission page here.

Danielle's Mito Mission Launches Today.

Danielle's Mito Mission news imageMeet Danielle, who we are thrilled has joined us this month – with a brand new Mito Mission based in Dundee, and becomes our fourth mission based in Scotland.

It took Danielle 33 years to get a diagnosis. She is therefore very keen to bring hope and empowerment for anyone still experiencing a lack of diagnosis and a medical wilderness – as well as raise vital awareness for mitochondrial disease.

Read Danielle’s journey with the illness and much more on her mission page here.

Welcome Katie’s Mito Mission

Today we welcome Katie’s Mito Mission based in Nottingham. Lovely little Katie has five older siblings who are all healthy and show no signs of mitochondrial disease, which made the news of Katie’s diagnosis all the more shocking for her parents, Elaine and Leigh.

Katie’s Mission is our second that is Nottingham based and the two families are finding it a comfort to know each other.

You can read Katie’s story on her webpage which illustrates how frustrating the family’s journey to diagnosis was and how they want other people’s diagnosis story to be much simpler.

Huge welcome to Katie and family.

Welcome Katie's Mito Mission.

Katie's Mito Mission news imageToday we welcome Katie’s Mito Mission based in Nottingham. 

Lovely little Katie has five older siblings who are all healthy and show no signs of mitochondrial disease, which made the news of Katie’s diagnosis all the more shocking for her parents, Elaine and Leigh.

Katie’s Mission is our second that is Nottingham based and the two families are finding it a comfort to know each other.

You can read Katie’s story on her webpage which illustrates how frustrating the family’s journey to diagnosis was and how they want other people’s diagnosis story to be much simpler.  And see all our missions here.

Huge welcome to Katie and family.