Grants Update

Thanks to our fabulous supporters, we were delighted to grant funds this year towards enabling mitochondrial disease to be added to the Rudy Study. Check out more about this project on their website.
We’re also very excited to be able to contribute to research about mito and mental health which will begin next year. Both of these through our friends at The Lily Foundation

Our previous grant funding projects through Lily have been a 4-year gene editing research project and a support weekend for young adults affected by mitochondrial disease.
With your amazing help, we’ll continue to raise awareness and hopes of treatments and a cure for mitochondrial disease, and support for those affected.

Grants Update.

Grants UpdateThanks to our fabulous supporters, we were delighted to grant funds this year towards enabling mitochondrial disease to be added to the Rudy Study. Check out more about this project on their website.

We’re also very excited to be able to contribute to research about mito and mental health which will begin next year. Both of these through our friends at The Lily Foundation

Our previous grant funding projects through Lily have been a 4-year gene editing research project and a support weekend for young adults affected by mitochondrial disease.

With your amazing help, we’ll continue to raise awareness and hopes of treatments and a cure for mitochondrial disease, and support for those affected.

Ronni & Freddi’s Mito Mission Launch

Delighted that this month is seeing us welcome a new mission – Ronni & Freddi’s.

Ronni & Freddi are brothers and have been affected in very different ways with mitochondrial disease. Ronni is eight and doing well, but tragically for little Freddi, it was severely
life limiting.

As part of Freddi’s legacy, his family have joined us with their own mission, based in King’s Lynn, Norfolk to help raise awareness, support and funds for research for everyone affected.
Please take a little time to read about the family’s journey with mito on Ronni & Freddi’s webpage

Ronni & Freddi's New Mito Mission Launch.

Ronni & Freddi's Mission Launch Nov20Delighted that this month is seeing us welcome a new mission – Ronni & Freddi’s.

Ronni & Freddi are brothers and have been affected in very different ways with mitochondrial disease. Ronni is eight and doing well, but tragically for little Freddi, it was severely life limiting.

As part of Freddi’s legacy, his family have joined us with their own mission, based in King’s Lynn, Norfolk to help raise awareness, support and funds for research for everyone affected.

Please take a little time to read about the family’s journey with mito on Ronni & Freddi’s webpage

Steph & Jake’s Mito Mission Launch

Thrilled to introduce and welcome our first ‘twosome’ on a mission … Steph and Jake!

 

They’re mum and son and both live with different diagnosis and the varying symptoms of mitochondrial disease. Steph and Jake are keen to raise more awareness from their home in Bury St Edmonds where they are wonderfully supported by Steph’s husband and Jake’s dad, Paul.

 

By sharing their story locally and beyond, Steph, Jake and their family want to ensure that more people know about mito, and how important it is to find treatment and a cure.

 

Please read about their journey with mito on Steph & Jake’s webpage.

Steph & Jake's New Mito Mission Launch.

Steph and Jake's MissionThrilled to introduce and welcome our first ‘twosome’ on a mission … Steph and Jake!

They’re mum and son and both live with different diagnosis and the varying symptoms of mitochondrial disease. Steph and Jake are keen to raise more awareness from their home in Bury St Edmonds where they are wonderfully supported by Steph’s husband and Jake’s dad, Paul.

By sharing their story locally and beyond, Steph, Jake and their family want to ensure that more people know about mito, and how important it is to find treatment and a cure.

Please read about their journey with mito on Steph & Jake’s webpage.  

Laura’s Mito Mission Launch

It’s fantastic to have the launch of a new mission this month – Laura’s. A huge welcome!  Laura and her family are based in Northwich, Cheshire and are keen to raise awareness of mitochondrial disease by telling their story with the illness.

Living with the impact of mito every day can be challenging and any support for their mission will be warmly welcomed.

We are an ‘umbrella’ charity – so whether you support My Mito Mission as a whole or any individual mission – it’s all one great cause!

Please check out Laura’s mission page

Laura's New Mito Mission Launch.

Laura's Mission Launch 06Aug20It’s fantastic to have the launch of a new mission this month – Laura’s. A huge welcome!  Laura and her family are based in Northwich, Cheshire and are keen to raise awareness of mitochondrial disease by telling their story with the illness.

Living with the impact of mito every day can be challenging and any support for their mission will be warmly welcomed.

We are an ‘umbrella’ charity – so whether you support My Mito Mission as a whole or any individual mission – it’s all one great cause!

Please check out Laura’s mission page.

Aiman’s Mito Mission Launch

A huge welcome to Aiman Usman and his family from Rochdale who have joined us to raise awareness of mitochondrial disease by having their own mission, ‘Aiman’s Mito Mission’. The family lives with the impact of mito every day and any support for their mission will be warmly welcomed.

We are an ‘umbrella’ charity – so whether you support My Mito Mission as a whole or any individual mission – it’s all one great cause!

Please check out Aiman’s mission page.

Aiman's New Mito Mission Launch.

Aiman's Mito Mission Launch Jun 2020A huge welcome to Aiman Usman and his family from Rochdale who have joined us to raise awareness of mitochondrial disease by having their own mission, ‘Aiman’s Mito Mission’. The family lives with the impact of mito every day and any support for their mission will be warmly welcomed.

We are an ‘umbrella’ charity – so whether you support My Mito Mission as a whole or any individual mission – it’s all one great cause!

Please check out Aiman’s mission page.

Amanda’s Mito Mission Launch

A warm welcome to Amanda Coyne, from Wigan who has joined us to raise awareness of mitochondrial disease by having her own mission.  Amanda lives with the impact of mito every day and any support for her mission will be very welcome.

We are an ‘umbrella’ charity – so whether you support My Mito Mission as a whole or any individual mission – it’s all one great cause!

Please check out Amanda’s mission page.

Amanda's New Mito Mission Launch.

Amanda's Mission Launch 10th June 20A warm welcome to Amanda Coyne, from Wigan who has joined us to raise awareness of mitochondrial disease by having her own mission.  Amanda lives with the impact of mito every day and any support for her mission will be very welcome.

We are an ‘umbrella’ charity – so whether you support My Mito Mission as a whole or any individual mission – it’s all one great cause!

Please check out Amanda’s mission page.

Website Launch

Making our time in lockdown count, we’ve been busy finalising our brand new website – and it’s now live!

With its striking look and wealth of information about mitochondrial disease, we hope you will enjoy exploring all it has to offer. Don’t miss our ‘My Mito Directory’ where online information on mito books, audio, video, charities, helplines, research – and more – is brought together in one place!

As always, we’d love to hear your feedback on how our website might be improved even further.

Website Launch.

Website LaunchMaking our time in lockdown count, we’ve been busy finalising our brand new website – and it’s now live!

With its striking look and wealth of information about mitochondrial disease, we hope you will enjoy exploring all it has to offer. Don’t miss our ‘My Mito Directory’ where online information on mito books, audio & video, charities, helplines, research – and more – is brought together in one place!

As always, we’d love to hear your feedback on how our website might be improved even further.

Nick Joins Our Patrons

Sky News Sports Editor, Nick Powell joins My Mito Mission as one of our charity patrons. We couldn’t be more delighted that Nick has kindly agreed to take up the role and help us to raise awareness for mitochondrial disease.

Nick Joins Our Patrons. 

Latest Patron, NIck PowellSky News Sports Editor, Nick Powell joins My Mito Mission as one of our charity patrons. We couldn’t be more delighted that Nick has kindly agreed to take up the role and help us to raise awareness for mitochondrial disease.

Nick and his Sky Sports News team were a fantastic support in our 2019 #KissGoodbyeToMito campaign and rocked their green lips!

He joins existing patrons Neil Hurst, actor and presenter and Edmund Thornhill, MD of Thornhill Estates.

Our New Patrons

Proudly introducing our new charity Patrons – actor and presenter Neil Hurst and Edmund Thornhill, Managing Director at Thornhill Estates Ltd.

Neil and Edmund have both been exceptionally supportive in the past in helping our charity to increase awareness, funds for research and hopes for a cure for mitochondrial disease.

We are delighted that they have kindly accepted the role as our charity patrons and forward to working with them into the future.

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Introducing our new patrons.

New PatronsProudly introducing our new charity Patrons – actor and presenter Neil Hurst and Edmund Thornhill, Managing Director at Thornhill Estates Ltd.

Neil and Edmund have both been exceptionally supportive in the past in helping our charity to increase awareness, funds for research and hopes for a cure for mitochondrial disease.

We are delighted that they have kindly accepted the role as our charity patrons and forward to working with them into the future.

Paige’s Mito Mission Launch

A huge welcome to Paige Koch and her family who’ve joined us to raise awareness of mitochondrial disease from their home in Ballyclare, Belfast.  This lovely family sadly lives with the impact of mito every day and any support for their mission will be very welcome.

Paige's New Mito Mission Launch.

Paige's Koch's New Mito Mission LaunchedA huge welcome to Paige Koch and her family who’ve joined us to raise awareness of mitochondrial disease from their home in Ballyclare, Belfast.  This lovely family sadly lives with the impact of mito every day and any support for their mission will be very welcome.

We are an ‘umbrella’ charity – so whether you support My Mito Mission as a whole or any individual mission – it’s all one great cause!

Please check out Paige’s mission page.